I never thought it would be possible as we are very slowly becoming ill and have strange symptoms but doctors fail to know any so instead of being diagnosed early some of us remain undiagnosed due to the TSH never being tested or not 'fitting' into the equation. I was ill for such a long time, being diagnosed with 'this' 'that' or something else for which I had treatment (one under anaesthetic) for which there was no need and still becoming more unwell.
I then found Thyroiduk.org.uk - no forum then. I was prescribed levothyroxine, felt much more unwell than my 100 TSH when finally diagnosed.
My NHS Endo added T3 to T4 first of all and I felt a massive difference - I could breathe freely and my flesh felt as it was absorbing oxygen. She wanted me to stop taking T3 due to my blood results and I refused so my T4 was dropped
Fast forward 4 years or so, changing and trialling different options of thyroid hormone replacements through my own efforts . Anyway, to cut a long story shorter I am now fit and well and energetic with no clinical symptoms.
The fact that you have no thyroid gland and have been unwell for thirty years they should allow you to trial natural dessicated thyroid hormones which contain all of the hormones our healthy gland would have produced (it doesn't agree with everyone - but unfortunately due to False Statements made by the British Thyroid Association enabled it to be withdrawn from prescribing, just as they've done recently with T3. They could also add T3 to your T4.
I am on T3 only has given my body the freedom from ill-health. I aslo sourced several NDTs tried T4/T3 but settled on T3 only.
I believe that some of us cannot convert levothyroxine to sufficient T3 thus we remain unwell.
In the UK it is insisted that a TSH should reach 10 before being diagnosed whereas in other countries it is around 3+.