I'm 19, my mum has hypothyroidism and I'm being investigated for thyroid eye disease. I have been having tests for years now to find out what's wrong with me and for the first time I think TED seems to match me quite well but its hard to tell from a list of symptoms so I was wondering if someone can tell me how their eyes feel with this disease and how they got diagnosed. I know that they are only looking at mild thyroid disease because there are no obvious changes to the appearance of my eyes and I think that makes it harder to diagnose. Besides my eye symptoms I have extreme tiredness and long term chronic constipation. I have had a basic thyroid function done several times but the only result I have got on me is TSH:3.5 (0.2-5) t4:19 (9-24)
The problems with my eyes started 2 years ago where it basically felt like I had really bad eye strain, they hurt and felt incredibly uncomfortable and weak. The also feel stiff and it hurts to look up,down and sideways and I do feel there some sort of pressure behind them. Another weird thing is that my friends are always telling me to stop zoning out because sometimes my eyes feel most comfortable just staring at something... I went to the opticians and they said that they were just dry and gave some drops. After a year and constant visits to the dr I finally got to see the eye specialist who have said that I have mild blepharitis and one eye wasn't producing as much tears as it should. I got plugs put into my lower lids to help with the dryness. Theres just a few things that haven't made sense to me and the dr's and that seems to be that my eyes feel so much worse than they appear to be dry. I only use 'lacri lube eye ointment' 5 times a day at least (drops do not work what so ever) which doesn't make sense to the docs because they say even people with severe dry eyes don't use that much and mine looks mild.
Last week the doctors decided they would finally test my thyroid antibodies, does it sound like I could have mild thyroid disease?
Thanks and sorry for how long this is!