I added a bit to the end of my previous post last night but this morning I honestly feel like giving up. I phoned the General Hospital this morning,where I'm awaiting a thyroid isotope scan. I saw a ENT guy privately yesterday to try and find the cause of my choking on food. One of the things he wants to do is give me a barium video test and he organised that for today but overnight I've read in several places that you shouldn't have any other radioactive tests for 4 weeks prior to the thyroid isotope. So, I thought I'd check with the radionuclide imaging department first thing this morning. Person I spoke to didn't know but checked to find my isotope referral.......apparently THERE IS NONE!! She said she'd speak to the appointments person and get back to me. She hasn't yet and I phoned three hours ago.
So, my G.P. Surgery insists it has been requested but the hospital say it hasn't. Brilliant!
I had to postpone the barium test because I didn't want to risk not having the isotope but I stopped the Levothyroxine nearly four weeks ago, in preparation for the scan,as I was told on 16th December by phone about nodules being found on my thyroid and an isotope request going in.
I feel like I'm going round in circles. My mum has just told me I should have cancelled the isotope instead of the barium but then I never do things right in her eyes but surely it's better to go with the scan that I've been told is checking for hot or cold nodules (especially as I've already been told one nodule looks suspicious).
What the hell am I supposed to do, when I get conflicting stories from my surgery and the hospital about the isotope? Was I wrong to cancel the barium test? Is this normal to have to fight for appointments and query the handling of every damn procedure?
It's bad enough feeling so poorly, without the struggle for proper treatment.
Sorry, rant over. I think I just needed to get things off my chest.