Up and down.

[Leener71]

I was hyperthyroid, then after Neocarbazole went just under, niw the endo says i am slightly overactive again and i should take 1 neocarbazole 5 mg daily. I seem to have more hypo symptoms though.... cold, tired, dizzy, no get up and go....

Here are my latest blood results....

T4 frei 11.5 ref 6.8 -18.00

TSH ( 3.15) 0.066 ref 0.25 - 4

Would really appreciate your feed back.

Thanks

[Clutter]

Leener71,

Is TSH 3.15 or 0.066?

Do you know what your Free T3 is?

[Leener71 in reply to Clutter]

Tsh is 0.066 . Dont know what that is in brackets but its like that on the result sheet.

No i only have these two results, they didnt test anything else.

Thanks Clutter

[Clutter in reply to Leener71]

Leener17,

TSH 0.066 is suppressed but your FT4 is less than halfway through range so I don't think you are hyperthyroid. I would order a private thyroid test to check FT3 level in addition to FT4. Unless FT3 is over range I don't think I would want to take 5mg as it will make FT4 drop further.

thyroiduk.org.uk/tuk/testin...

[Leener71 in reply to Clutter]

Thanks Clutter. May i still ask you a wuestion. What happens if the FT4 goes further down?

I live in Switzerland and have no idea about private testing. Will need to look into that.

Glad that you agree with my gut feeling. I have already only been taking the 5 mg every other day!

Another question.... does it matter when you take the carbamazole?? (Time, meals etc. )

Thanks

[Clutter in reply to Leener71]

Leener71,

FT4 will go down now you are taking Carbimazole. If you already feel hypothyroid it is likely to become worse as FT4 drops.

I don't think it matters when you take it.

[Leener71 in reply to Clutter]

Thanks Clutter, have decided not to take it anymore for the moment. I have to be tested again mid June.

As I have a goitre growing inwards I am on the way towards a total thyroidectomy, which I am not keen on at all! Waiting to have lung capacity test done.

[Clutter in reply to Leener71]

Leener71,

I had a hemithyroidectomy and completion thyroidectomy 3 months later. I had very little pain post op and recovered well from the surgery. I later had probelems with Levothyroxine but I'm well on Levothyroxine + T3 now. Some retrosternal goitres are removed in pieces so the surgery may not be too radical or invasive.

[Leener71]

Oh that is good to hear. The surgery isnt my biggest worry really, its the aftermath of getting the levo right etc. I sppose you self medicated the T3? Good to hear that you feel fine now.

[Clutter in reply to Leener71]

Leener71,

I did selfmedicate the T3 for a few months then endo agreed it was good for me and prescribed it.

[Leener71]

Thank you Clutter.... will probably be back soon with other questions.