I had a general appointment with Gp today. I had requested my normal prescription online. When i got in the office all she wanted to tell me was that T.3 is now not being prescribed as it hasn't proven to be of use. I told her i had been waiting to be told this ,but the real reason being the rip off cost to the NHS. She has referred me back to the Endo to wean me off the T.3. Can i insist that they keep providing it for me? It has made such a difference to me over the last 4 years or so. I can't bear the thought of going back to how i used to feel on just T.4
T3 and T4. Working well. Now told the T.3 will ... - Thyroid UK
T3 and T4. Working well. Now told the T.3 will not be prescribed.
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jill258
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jill,
Many of us on this forum have had our essential T3 prescription withdrawn, even after a blatant big improvement in wellbeing.
We have been forced to self medicate. Members will supply details of buying T3 from abroad by private message if you wish to go down the route.
Hopefully someone will be able to help me with that. I will question my Endo as to whether he will prescribe NTD. He did for a while previously on a private prescription. They don't seem to realize the need for NTD or T.3
When i was first sent to the Endo about 5 yrs ago he gave me private prescription for NDT and i ordered it online from a UK pharmacy and sent them my script. The cost wasn't too bad at the time. Less than t.3 is currently anyway. I will have to see what i can sort with the Endo if i get to see him. I have a feeling he will just email my GP with instructions of how to get me off T.3 and how to increase T.4. As you can see i don't really trust any of them.
Yes, I am concerned about this also. Which area of the country are you in as I'm worried about it happening here soon and trying to keep tabs on it lol. Hope you don't mind me asking? 
Hi. I'm in Kent. Near Tunbridge Wells.
THank you, okay, so not my area yet- so worried about them just turning around and saying no without any warning!
Hi. Where abouts are you. Maybe i need to move lol
Lol - Portsmouth. Still says amber on prescribing formulary for this area but you never know how quickly they update these things 
I just a prescription in early as over worried so hoping to pick up tomorrow lol - gosh rediculous they could do something to get you so worried!
Oh well. I feel like I am better equipped now to deal with it once my appointment comes through after information on this site.
I know but I'm on T3 only and can't convert at all and I'm happier about being able to source it elsewhere after seeing those that do on here but noticed the long delays in receiving it so really just a bit worried about not getting enough warning to replace it as just can't afford for that to happen right now
Jill258,
You can try appealing the decision, it is not, apparently, supposed to be a blanket ban. You might also want to show your GP and endo the statement from the BTA about T3 british-thyroid-association...
I've got all three of the FAQ sheets for endocrinologists/GPs/Patients all printed out to hand out to all of them when I see them next. When it comes to ammunition against this backwards step in our care, to paraphrase someone else's slogan, every little helps! Never thought it would have come from the BTA though... 😂
Like many here, we have no choice but to buy from abroad for both T4 and T3. I am lost for words at what the NHS are doing to us. How many will die prematurely because of it.
Can you message me as to where you get your T.3 from and how please
and in extremely poor health (expensively)
shawsAdministrator
See how rumours are spread. It is not supposed to be withdrawn if you need it. There is a person who is interested in T3 being withdrawn and I'll try to find the link.
So phone your GP and tell her she's made a mistake as you are ill without it and you are a member of the NHS Choices for information/advise about the thyroid gland.
healthunlocked.com/thyroidu...
thyroiduk.org.uk/tuk/testin...
Levothyroxine (T4) is inactive and it has to convert to T3 which is the only Active Hormone required in all of our receptor cells.
The BTA guidelines are that if already on T3 and benefiting should continue to prescribe for now.I had this confirmed by the Chief medical Officer and posted the reply on here at the end of April. Feel free to use it. jill258 FIGHT to keep it!
The more people who just accept this and don't fight the GP's to continue it the more they will think they can get away with it!
radd Saggyuk Matt8394Alien
Thanks, I definitely will if GP says anything. Just saw my endo a couple of weeks ago and I actually requested to add T4 instead of increasing my T3 and he was reluctant to do so, so don't think I'll have a problem with him at least lol
Saggyuk Any Endo's who are pro T3 need to be asked to stand up and support us too - if they don't speak out to say that they are seeing benefit in issuing t3 who will. Maybe their voice will be heard, if ours isn't!
I would basically tell your GP and Endo where to go VERY loudly ... And if I was you I'd knock the pair of them on their arses and happily deal with the conciquences ... The fact is that as far as I can tell you still can be prescribed T3 but because the GP and Endo are only interested in keeping the obscene salaries from the NHS and not having the well being of their patients as their main goal .. They bow to the pressure given to them by the NHS to take people off of T3, putting them on Levo, ignoring their horrible symptoms, telling them that their making it up and slamming anti-D's down their neck!! ... You can get T3 from a good few sources at a relatively decent price ... You can still have your function tests done by your GP ... And if you feel well on the T3 and the Dr tells you to come off it, put him on his arse again! My lieing full of excrement endo actually said that T3 medication can actually be harmful ... When I went to see him he gave me a somewhat laughable physical examination, said he couldn't find nothing wrong with me .. a week or so later I got my BH Thyroid plus 12 blood results back showing me to have high above range TSH, high above range FT4, low in range FT3, high borderline out of range RT3, VERY high anti-bodies of both types confirming Hashimoto's and a Vit-D deficiency .. And a NHS 'Specialist' who rinses the NHS for a ridiculous salary 'Couldn't find nothing wrong with me' .. I presented the BH results to him and all he said was 'Some assays are different' ... He need garroting with his stethoscope!!
I am interested in a private message about T3
Please write a brand new post - explaining what is wrong with you, test results, etc.
At the very least, people want to know what country you are in! That has a big effect on the answers. Many also like to feel you know what you are asking for and understand your current situation.
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