My Dr Won't prescribe me T3, what can I buy as a substitute?

[Lozziefibro67]

Hi I've been on T4 for several years now & I've gone up several dress sizes & I also have fibromyalgia & had three Ops on my lower back L5 S1 disc replacement & fusion. you see the weight I've put on isn't doing my back any good either as it's becoming more painful, I hardly eat next to nothing I'm so depressed & Fed up my marriage has also fallen apart but after speaking to my G.P he just said my thyroid tests are fine & basically could you leave as I have a waiting room of patients. So if anyone has any suggestions or supplements I could buy with T3 I'd appreciate a private message.

[greygoose]

Do you have a copy of your results? 'Fine' is an opinion, and doctors' opinions on thyroid hormone results can often be over optimistic, to put it politely. You need to know what they are.

There is nothing that can replace T3, except T3. But you need to know if you need it - which is why you need your results. However, if you're a bad converter, you could have nutritional deficiencies. Have you had your vit D, vit B12, folate and ferritin tested? If not, ask your doctor to do that.

[Lozziefibro67 in reply to greygoose]

Hi Greygoose, I don't have a copy no but I may go online & see if I can get my records up on the GPS site where I get my repeat prescriptions from.. I take VitD supplement & my b12 is fine unlike my daughter who's on injections bless.

[greygoose in reply to Lozziefibro67]

Yes, but did you have your vit d tested before supplementing? If not, how do you know how much to take? How much are you taking? What is your B12 result?

[Lozziefibro67 in reply to greygoose]

I'm gonna go back to my surgery & ask to see the Dr again as I want to have some more tests done, I had to ask my Dr to refer me to a rheumatologist as my Dr didn't know if I had fibromyalgia either as thought it wasn't a illness bloody joke..

I appreciate your replys & once I get a copy or more tests done I'll let you know what they are. X

[Kitti1]

Flipping heck Lozziefibro67 your gp needs stringing up ! Can you change surgeries ?

Firstly you are a very beautiful lady, those butterflies have good taste 👍 I'm guessing 67 is your year of birth ? Then your 2 years older than me and I wish to goodness I looked as good as you !

I really feel for you having continuing hypo symptoms fibromyalgia and back problems. Those ops sound horrid.

Unfortunately you wont find a gp that will prescribe t3. An endocrinologist may if you can get a referral, but in the current climate it is unlikely but possible.

What dose of levo are you taking ? Any idea if you've had your antibodies checked for hashimotos ? Firstly you need to get hold of you test results. It is your legal right to have them. Either pop in and ask the receptionist for a print out, or phone up and ask for them over the phone. Ask for the ranges for each test, this is important. When you have them do a post on here and more knowledgeable people than me can advise you on whether your under medicated on levo.

Before considering going down the self medicating route. It is important that you have your t3 level checked. Gps won't / can't do these. Some endos will. Also get your key nutrients checked - vitamin b12, vitamin d, ferritin and folate. These are all key in your conversion of t4 to t3 and feeling wall. TUK usually recommends either Blue Horizon or Medichecks. I'm at the early part of my journey and recently went for the plus 11 on blue horizon.

I'd also recommend doing lots of reading on here. Really explore the site as its an absolutely fantastic resource 👍

While your feeling so rotten please don't starve yourself. If you are under medicated, then your adrenals will be taking up the slack and need all the help they can get. So please eat well.

Lastly there is hope 👍😀. It can be a long journey but things will improve. A lady recently posted before and after pics of herself and she'd lost a lot of weight and felt fabulous and well.

[Lozziefibro67 in reply to Kitti1]

Hi Kitti1, Lol your absolutely right I'm 49yrs babe & feel like 100yrs due to pain, depression, tiredness, hot/cold sweats, constantly crying to the point I don't even want to go out any where and I was never like that..

I don't starve myself either I just don't feel hungry at times & when I do have something to eat in recent months I just think I'm gonna get bigger than I am already & I can't put any more weight on due to my back as extra weight isn't gonna do me any good either.... I'm just in a no win situation at the moment.

I'm gonna go back to my surgery & ask to see the Dr again as I want to have some more tests done, I had to ask my Dr to refer me to a rheumatologist as my Dr didn't know if I had fibromyalgia either as thought it wasn't a illness bloody joke..

I appreciate your replys & once I get a copy or more tests done I'll let you know what they are thank you Kitti1 x

[Kitti1 in reply to Lozziefibro67]

I fully appreciate what you say concerning weight and your back pain. I do feel though a balanced healthy diet, eating regularly will help over all. Particularly with the feelings of depression.

I hope you get things resolved quickly. I'll certainly look out for your test results and further posts. Best regards 👍

[traet02]

Hi Lozzie just wondering if you have got sorted yet, correct meds? I have also been diagnosed 3 yrs ago with fibromyalgia along with being hypothyroid for the last 20 and taking 100mg levo at the moment. I refused to accept the label fibromyalgia as this was just easy for them to pass this off on me as they did all tests they could and came back with nothing, no arthritis or related arthritis conditions. I tried to tell the doctors that i believed that it was my hormones causing the pain as at the time I was 48 and tried to come off the pill as I had recently ended the relationship I was in. The first thing was that I missed two periods in a row and maybe two weeks after coming off the pill the pain set in and got worse. The doctors took tests to discover i was peri-menopausal oestrogen dropping. I knew then that the pill was masking the peri-menopause and asked to go back on the pill as my symptoms of pain was only when i came off the pill. I started back on the pill and after only a few days the pain was subsiding to eventually disapearing in about two weeks. I told the doctor that I believed that the pain was hormonal due to the drop in eostrogen and they would not listen to me. It was when i turned 50 that the doctor said that I couldn't take the pill anymore because of my age and I had to come off it. I had the mirena coil fitted and within days the pain was coming back. The pain got so bad that I had to take time off work. I told the doctors that I wanted hrt as i firmly believed that the pain was because of oestrogen dropping off again. I was given hrt and the pain has lessened off massively. The pain was i still breaking through but the higher hrt I was given the more the pain subsided. I'm now on the highest level of hrt or so the doc says and I have background pain not the disabling pain that i get if I don't have the hrt. So long story short have your hormones checked it could be oestrogen deficiency that is giving you pain. I know that if I don't get hrt meds the pain swings in in no time and takes my whole body over.