Endometriosis and Hashimotos

Hello

Does anyone have Endometriosis as well as Hashimotos and/or Fibromyalgia? I'm really struggling with pelvic pain and hip pain. I have a doctors appointment next week, but wondered if anyone had any experience with both these ilnesses?

I was diagnosed with fibromyalgia in December, but was borderline lupus so I'm wondering if the diagnosis could be wrong too as I know lupus attacks other organs not just my thyroid!

Thank you in advance!

Sophie x

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5 Replies

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  • Having non-optimal thyroid, adrenal and sex hormones will cause all sorts of problems. I had all sorts of gynaecological problems, including endometriosis, adenomyosis, adhesions, scarring, and I was constantly producing ovarian cysts. But this was all before the days of the internet. I have no idea what my hormones were doing, other than I was told my thyroid was "borderline underactive".

    Have you had any thyroid function testing done recently? What were the results?

    You will benefit from getting your minerals and vitamins optimised, no matter what underlying conditions you have. Have you had any nutrient testing done?

    If your doctor has done any blood tests in the last 2 or 3 years you should ask your surgery for a copy of them, including the reference ranges. Even better would be if your surgery allows patients access to their own blood test results online (a few do, many don't). When asking about results and wanting copies, always take proof of identity with you, and always do it at times of day when receptionists are likely to be at their least busy. Expect to pay a small amount for paper and ink. If they ask for lots of money come back here and ask for advice.

    nhs.uk/chq/pages/1309.aspx?...

    nhs.uk/NHSEngland/thenhs/re...

    nhs.uk/chq/Pages/2635.aspx

    nhs.uk/NHSEngland/thenhs/re...

  • Thank you for your reply.

    I had my thyroid tested just before Christmas as it was in normal range. I will ask for a copy of this though as I'm not sure which tests they did. I've had plenty of bloods taken so I will ask for all of them.

    I haven't had any nutrient testing I don't think! I will ask.

  • Welcome to our forum,

    One of our Advisers (now deceased) ran the Fibromyalgia Research Foundation and I shall give you a couple of links re fibro:-

    web.archive.org/web/2010103...

    I do know he treated his fibro patients with T3 only.

    web.archive.org/web/2010081...

    This is a link/excerpt re endometriosis:

    Women with endometriosis are also more likely to have:

    abnormally low thyroid function (hypothyroidism)

    chronic fatigue syndrome

    fibromyalgia

    lupus

    multiple sclerosis

    asthma

    allergies

    thyroid-info.com/articles/e...

  • Wow that's so interesting, thank you!

    I will definitely ask my doctor to test me for this next week. The pelvic pain seems to be getting worse every day.

    I take levothyroxine, I'm not sure if that is just T3 or not.

  • Levothyroxine is the hormone of choice by the medical profession. It is T4 only and should convert to T3. T4 is inactive and T3 is active and it is T3 only which is required in our billions of receptor cells to enable our body to work in unison.

    Sometimes we don't have sufficient T4 (levo) to convert and sometime we don't convert efficiently.

    They rarely test Free T4 or Free T3 to see if we have sufficient so we have to read, ask questions and find our way through the maze if the doctor only takes notice of the TSH and T4 results and tell us we're 'normal' when we still have clinical symptoms.

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