I find the NHSCC’s consultation on the efficacy of Liothyronine (T3) disturbing and unfounded. This product, which I source myself from another European country at a negligible cost has been a life saver for me and countless others.
The NHSCC website nhscc.org/latest-news/400m-... claims that whilst Liothyronine is ‘clinically effective’, there are ‘more cost-effective products available’. There is a fundamental lack of understanding in this statement. Whilst Levothyroxine (T4) is similarly used in the treatment of hypothyroidism and associated complaints, T4 does not suit everyone with this condition.
I am one of those people. Were I to remain on T4 I have little doubt that I would be bedridden and unable to contribute to society, additional to having a very poor quality of life. My first line treatment was T4 and as I was unable to regain any sense of wellness from T4, I was compelled to investigate further when my GP told me that T4 was the only treatment for hypothyroid conditions. Through private consultations, private blood tests and alternative sourcing, I have clawed back some of the wellbeing enjoyed prior to my diagnosis and remain functioning and contributing.
Many people are reliant on the NHS to see the longer term benefits of T3. If Levothyroxine does not return good health, without T3 on prescription many longer term problems such as chronic fatigue syndrome or myalgic encephalomyelitis present. May I suggest that these are likely to cause a greater burden on the NHS in the longer term?
Returning to the NHSCC’s web page, the suggestion is that the reason T3 has been selected for this process is cost. A thirty pill packet of 25mcg T3 can be had in some parts of Europe for €1.15. The many suffering from hypothyroid conditions should not suffer further due to the unconscionable price gouging which has befallen this generic medicine. It is surely a matter for government procurement to pursue the manufacturers of this vital medicine. The hypothyroid cohort should not be punished for the incompetence of others, yet this appears to be exactly the NHSCC's proposal.