Eye pressures...: Hi, anyone else have elevated... - Thyroid UK

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Eye pressures...

DoubleM profile image
10 Replies

Hi, anyone else have elevated eye pressure? I have no family history of glaucoma and this is the first time I've had my pressure checked before an eye test.

I do get occasional TED symptoms but tested negative for TRAB in 2008 so told I don't have graves :-/

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DoubleM profile image
DoubleM
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10 Replies

I've had elevated eye pressure and had to go back for repeat testing then told No Glaucoma.

What's TED and TRAB?

X

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Clutter profile image
Clutter in reply toMary-intussuception

Mary-intussuception,

TED = Thyroid eye disease caused by Graves disease.

TRab = Thyroid receptor antibodies which is one of the tests for Graves disease.

Mary-intussuception profile image
Mary-intussuception in reply toClutter

Aah Thanks, thought I figured out the first one correctly.But these are unique to Graves, then? Which is why I'm not familiar with the terms being Hashi's.

X

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Clutter profile image
Clutter in reply toMary-intussuception

Mary-intussuception,

Hashimoto's patients can have TED but it is quite rare but it does mean the patient also has Graves antibodies.

Fruitandnutcase profile image
Fruitandnutcase

You should get your pressures checked again at different times of the day and see what your readings are. It also depends on what your eyes look like when your optician looks at them.

There's no way of telling whether or not you had someone in your family from way who had glaucoma and no one knew.

Good luck, hopefully further readings will be ok but have your eyes and pressures checked regularly from now on.

DoubleM profile image
DoubleM in reply toFruitandnutcase

Thanks, I and my immediate family all wear glasses so regular eye checks are the norm no one had had raised pressures before. I'm assuming I've not had pressures done before due to a lower age limit but will get the pressures checked again either this week or next week.

Achilles_Pain profile image
Achilles_Pain

No idea about being under pressure, but my eyes do sometimes feel strange. The best description I can give is they feel like they're under pressure and about to pop out of my head. I have been tested (not specifically because of this, but because it was part of the general eye test I was having) and I was fine each time. This was always at its worst just before I had double vision while I wasn't on any medication, or not enough when I was. The optician told me it was a common symptom of an under medicated underactive thyroid because the muscles around the eyes are affected and don't work properly (and they wrote a letter to my new GP telling him I needed to be put back on levothyroxine - my prev GP had taken me off it because I was "cured" and my new GP wanted to wait for the results of a blood test before prescribing it again). I occasionally have the same feeling, usually when I'm tired, but it isn't due to pressure, it's due to the muscles not working as they should. They did also say it's more common for overactive thyroid patients, but still common for underactive.

Mary-intussuception profile image
Mary-intussuception in reply toAchilles_Pain

Did you have any new headaches before or with the double vision? Or any jaw pain when eating?

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Achilles_Pain profile image
Achilles_Pain

HI. No, I hardly ever get headaches - one every couple of years is bad going for me. I've had a problem with my sinus for over two years now (according to the x-ray my dentist took) which causes a fair bit of aching on one side of my face, but not really pain. It got better for a while on various penicillins and similar, but always comes back after a few months. My GP tried me on steroidal nasal spray but it made no difference whatsoever. We agreed to leave it a few months to see if my recovering health now I was back on levo made a difference. It hasn't so I'll probably be hassling him again in a month or so.

When I had my eye test at the opticians (Specsavers) after which they sent me back to the GP with a letter they also referred me to the hospital on the off chance they were wrong about it being my thyroid. Two days after starting back on the levo the double vision had prwtty much gone away during the day and after about a week it was gone in the mornings and evenings, too.

While at the hospital, as well as various visual tests they did another blood test - I can't remember what but the TRab mentioned above sounds like what the consultant told me - but I never heard from them about the results, which presumably means they came back negative. And because they were ordered by the hospital and not my GP they don't appear online in Patient Access.

Astridnova profile image
Astridnova

I used to get terrible sinus pain - for years - until I started NDT. I also suffered from bouts of vertigo. The vertigo went when I began to take B12. However, recently, when I failed to increase my NDT dose appropriately, I began to get sinus pain and dizziness again. I did a bit of reading and found that hypothyroidism can affect the fluid in your ears. The sinus pain and dizziness disappeared within days of increasing my dose.

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