Just wanted to check in again for some advice and I guess reassurance.
Been on Levothyroxine for just over 6 weeks now. Was tested after 4 weeks because my symptoms were awful and also because I had a history of 7 months gut pain, nausea, bloating, poor appetite. I have had endoscopy, ultra sound, barium swallow and CT scan for this, all came back clear so heading towards a functional gut disorder type diagnosis I suppose ( although still have no clear diagnosis) Also have a longer history of quite severe depressive illness, which has got significantly better, apart from being depressed about feeling so physically awful my thyroid test results were posted in my previous post and they showed slow but steady progress in the right direction. My tests included my T3 which gave me some confidence that my GP was being supportive and proactive. I have been flagged up as insufficient on vitamin D and he has me on a 7 weeks course to boost my levels with a plan to re test vitamin D and thyroid when the vit D had run its course. So 6 weeks to go before re test. He will not test for B12.
What prompted me to send this post is this: last week I had 5 really good days. My gastric symptoms had improved, as had my energy and general aches and pains. Then at the weekend I started to go downhill again with all my previous symptoms returning. My blood pressure dropped from my regular 128/80 to 103/70 and I felt sick and washed out for a couple of days. It is beginning to rise a little now so don't feel quite so grim.
The only other 'blip' on my horizon is that I found out last week that I have to have a colonoscopy due to some thickening being found on a CT they did of my bowel in February. No other red flag symptoms so I'm not panicking too much, although I dread the procedure, especially the preparation for it. I understand that thickening could be inflammatory disease or polyp and I'm trying not to think about the possibility of cancer, especially as I'm not showing other symptoms in my bowel and not losing weight, in fact gained quite a bit due to the hypo. Anyway, we will see.
Is this 2 steps forward 5 steps back pattern familiar to others? It's enormously frustrating to get a quick fix of what it feels like to be healthy and then feel that your are going in reverse. I know that I'm still very early days with treatment and I'm only on 50 mg. I would have thought a return of symptoms after 5 days improvement would be a clear indication of an increase being needed sooner, but what do I know! My gastric symptoms were improving over that 5 days, which was very encouraging.
Sorry about the length of this post but im just desperate to get that improvement back again. I have wondered about T3 private purchase but I think I'm still early days on the Levo and also I have read that T3 can potentially cause gastric symptoms albeit just initially and I'm trying very hard to keep my tummy happy. Going on Levo caused my gut pain for several weeks which has now subsided.
Any advice would be very gratefully received.
Love Hattie x