Radio 5 Live Interview

[lynmynott]

Lyn Mynott will be interviewed on the programme 5 Live Daily tomorrow morning at 10am about the high price of T3 and the problems that patients are facing.

Do tune in!

bbc.co.uk/5live/programmes/...

[EllaRuby]

Thank you, for all that you do, it's very much appreciated X

[TaraJR]

Brilliant.. my radio is now on, and I plan to record it too. Fingers crossed the message gets across loud and clear.

[lynmynott Partner Thyroid UK in reply to TaraJR]

I hope so! They actually phoned me at 8.15am this morning wanting to record it rather than do it live! Hope I did it justice!

[Rottie6]

Absolutely fuming after listening to that. They have no idea how many do well on T3 - we self medicate because we have to.

[mandy72]

so when your levels are 'good' but you still have symptoms they are saying there are other causes, whos job is it to find the other causes? Dr ,endo, who? they allways land up refering me to mental health who say im not needing mental health i need thyroid sorting but drs and endo are all useless and say symptons are in my head

ive certainly done to rounds with meication, levo, T3, NDT now liquid levo and for allmost 4 years have been past from pillar to post and literally felt at deaths door

[SilverAvocado in reply to mandy72]

Mandy72, I think you've highlighted the most important question. If it's 'another medical problem', then fine, just refer me to the specialist for that

[Kitten1978]

Thank you Lyn for all your good work!

[TaraJR]

Thank you Lynn! Well this has probably made a lot of us angry but it's a good start... it also highlighted the nonsense with NHS costings. Adrian Chiles couldn't understand the nonsensical cost could he?

He read out 2 of my texts, which I hope were a help to describe our feelings.

I think we need to get this on other programmes.. Watchdog, The One Show, what else? They should talk to more patients.

And of course, we should all comment on the consultations suggested on other threads.

Rally the troops!

[helvella Administrator]

Having just heard the program, I am so wound up!

Just where did that GP come from? Sure - she sends all her "difficult" endocrine cases to endocrinologists - that's likely. (Might take a year or more for the appointment to come round, but heigh, who cares about that?) And then, if the endocrinologist does suggest liothyronine, will she really prescribe it?

So what if the pricing is complicated? It isn't that the price has always been stratospheric - it has only gone there in recent years.

Don't you love the way Mark Vanderpump suggests levothyroxine, then everything else in the universe, only finally coming back to liothyronine after everything else has failed?

Assuming these people have close family, what would they do if they ended up in the same place that so many patients already are? Would they really stop their nearest and dearest buying online if that were the only option? (Especially if those people had already started and demonstrated how much better they became. I can see their ignorance precluding allowing them to start online ordering but to sotp them continuing is a big extra step.)

[lynmynott Partner Thyroid UK in reply to helvella]

I was shouting at the screen to the presenter saying, "Ask her if she prescribes T3 to any of her patients!" Bet she doesn't!

[Scotty]

Listening to Mark Vanderpump this morning I would say that he shows absolutely no awareness of the recent research showing that the relationship between TSH and T4/T3 is not fixed and can change at any time, and that in some patients who have reduced thyroid volume, increasing their T4 dosage can result in a paradoxical reduction in their blood T3 levels - these people absolutely need T3 and it should not be dismissed as having little clinical value.

Considering that Mark Vanderpump writes the UK guidelines that dictate how all the 12,000 or so people in the UK with thyroid problems are to be dealt with, he should be right bang up to date with all the recent research and be prepared to reflect that in the advice given therein. The fact that this appears not to be the case is nothing short of absolutely scandalous in my opinion.

[helvella Administrator in reply to Scotty]

He also (again - for he has done so elsewhere) confused "molecule" and "atom". We all know what he meant, but he is supposedly a scientific expert. There is often far too little science in medicine. That is, true science.

[jackiehyland]

For anyone who was looking forward to that programme I didn't listen to it but I'm pretty sure you must of known how it was going to pan out discrediting T3 again and they always will they don't want people taking it end of story the big question is why ? I think and I've always said that all the other medications you need to take with it all add up to more than the cost of liothyroxine combination T3 /T4 so the drug company's must be earning a lot of money maybe a loophole or tax or something that's why we're allowed free prescriptions !!! Personally if we were given the option to buy it instead of having free levothyroxine I would give it a go and wouldn't mind paying to feel better but that avenue has been closed off to us aswel !! I mean this pharma where n.h.s buy there drugs are pretty stupid they could make a fortune out of us unfortunates who are at the mercy of our clueless gp,s they could rename it T3 dezombifacation bring us all back to life how nice would that be 😀😀😀😀😀