Saturday Live - Michael Rosen: Just listening to... - Thyroid UK

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Saturday Live - Michael Rosen

helvella profile image
helvellaAdministratorThyroid UK
21 Replies

Just listening to this program - about 14 minutes in - Michael Rosen explaining his original diagnosis of hypothyroidism.

(And then on to Getting Better - but that is not the reason for this post.)

Saturday Live

Michael Rosen

Released On: 04 Feb 2023

Available for over a year

Nikki Bedi and Richard Coles are joined by Michael Rosen: Bear Hunt writer, broadcaster, covid survivor, national treasure… he tells us about his life lessons.

Susanna Thornton tells us about her lifelong association with cycling and freedom – which led to a mammoth cycle from Hong Kong to London and many much smaller, wild bikepacking trips in the UK, which she documents online. She joins us.

Actor Nikki Amuka Bird joins us to talk about her route into acting and her latest role.

Nature writer and conservationist Nick Acheson spent winter 2020 on his mum’s red bike following the hundreds of thousands of geese that descend on his native Norfolk, he joins us.

Former rugby union player Chris Robshaw chooses his tracks: If You Don’t Know Me By Now by Simply Red and California King Bed by Rihanna and we have your thank you.

bbc.co.uk/sounds/play/m001hwqs

Likely not accessible outside the UK - but you might be lucky.

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helvella profile image
helvella
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21 Replies
Gcart profile image
Gcart

I did listen to that prog . Not sure what I took from his experience though .

He certainly explained a very difficult lead up to the eventual diagnosis !

However the fix seemed very straight forward unlike my own and many others here .

TSH110 profile image
TSH110 in reply to Gcart

I bet he’d feel even better on NDT! My relatives found Levothyroxine wonderful it really did perk them up good and proper but it left me feeling truly awful. A living hell. I suppose he can only give his own experience.

TSH110 profile image
TSH110

He explained his symptoms really well, it was very moving. I presume Levothyroxine suits him. It’s good this info reaches as many people as possible. Getting a diagnosis can be very difficult.

helvella profile image
helvellaAdministratorThyroid UK in reply to TSH110

I've heard him discuss it before, but this time he seemed particularly on form. Maybe the people around in the studio helped?

TSH110 profile image
TSH110 in reply to helvella

yes especially the lady who asked some pertinent questions

arTistapple profile image
arTistapple in reply to TSH110

I did not find her questions pertinent at all. She acted like he needed pushing along, as they all seem to. However I admire his professionalism comfortably allowing this to go on. He is obviously an old ‘trouper. When are these people going to realise we want to hear the guest speaking not the interviewer. He needed such little prompting.

Raucous profile image
Raucous

Yes I heard that & wondered how it took so long to diagnose him despite having classic symptoms like being cold all the time! Perhaps because it’s less common in men…

helvella profile image
helvellaAdministratorThyroid UK in reply to Raucous

We see various estimates but it always ends up somewhere towards 10 to 1, women to men.

There certainly used to be doctors who seems to consider hypothyroidism as a disease of women. (Probably still remains as an attitude but at least it is written up as affecting both.)

TSH110 profile image
TSH110 in reply to Raucous

it took decades long to get a diagnosis in my case despite a family history of thyroid disorder and shed loads of classic symptoms….at least men can’t have the menopause rolled out as a reason for their symptoms. I think there ‘s just a huge level of ignorance of thyroid disorder amongst health professionals who can’t even see a case when it’s put before their very eyes and who appear to have no knowledge of the symptom cluster it presents with. There needs to be an overhaul of how it is taught and better understanding of what is a very common disorder that causes huge problems for the sufferer if left undiagnosed. Even when treated it can be intractable with only Levothyroxine offered as hormone therapy but many dont even pass the first hurdle of diagnosis in a timely manner, man or woman. The NICE guidance condems many to years of unnecessary misery.

The whole thing is a mess.

If the college of endocrinologists had anyone half way decent in charge they’d undertake a massive overhaul and get their house in order. But it seems all they want is patient blaming, a TSH of 20 as the lower range limit, t3 almost impossible to get prescribed and NDT permanently banned 🙄

Their idea of progress 😠😡🤬

humanbean profile image
humanbean in reply to TSH110

a TSH of 20 as the lower range limit

I've seen that mentioned, but never kept a record of where. Do you have a link to a mention of it?

TSH110 profile image
TSH110 in reply to humanbean

I thought SP 😬 was pushing it especially if you’re older. Ie no treatment if TSH up to 20 perhaps my wording was not clear

humanbean profile image
humanbean in reply to TSH110

SP?

humanbean profile image
humanbean in reply to TSH110

Oh, just realised - Pearce.

TSH110 profile image
TSH110 in reply to humanbean

this comes form one of his papers how can it be sub clinical if TSH is over 10 ? That’s overt not sub B clinical

Subclinical hypothyroidism with TSH concentrations above 10 mIU/L

it’s a TSH heavy read 😴 but does not directly suggest 20 as cut off for sub clinical but I am sure I’ve read it in one of his papers

There’s this claiming TSH of 10 is mildly increased oh how I wish he could be given a TSH of 10 and see just how mild it is 😡

etj.bioscientifica.com/view...

pennyannie profile image
pennyannie

NIKEGIRL

Christabel profile image
Christabel

I heard some of the programme, but not that part. Some years ago, he did a short programme on Radio 4 where he talked about his symptoms, one of which was a change in his voice, which of course eventually led to a diagnosis.

helvella profile image
helvellaAdministratorThyroid UK in reply to Christabel

He did so in an episode of "Word of Mouth" - maybe a couple of years ago? That definitely had him emulating his voice at the time of diagnosis.

But quite possibly in another program.

Christabel profile image
Christabel in reply to helvella

Yes, I think it was quite a long time ago.

HEA72 profile image
HEA72

Thank you for the link. It was an interesting interview, I enjoyed it all as well as the hypothyroidism part. Interestingly I was sent to a nephrologist years ago, because my then GP thought I had a kidney issue - one being down to my yellowish skin (when I had a host of hypothyroid symptoms). The nephrologist wasn't as astute as Michael's endocrinologist, as mine relied on the TSH result and said it's not thyroid! ☹️

helvella profile image
helvellaAdministratorThyroid UK in reply to HEA72

Sometimes there is a radio program in which the participants aren't all shouting each other down, talking over each other, etc. But still holds interest and is, overall, informative. I think that was one!

HEA72 profile image
HEA72 in reply to helvella

Yes it was a good conversation. Niki Bedi seemed to have knowledge on hypothyroidism. It made me wonder if she or a close person to her has it too. Or maybe she's a good researcher. I see she says she's fascinated by all things medical, on the 'Meet The Presenters ' page.

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