Aches and pains

Hi I had a full thyroidectomy almost 16 years ago. I have to take regular vitamins including b12 injections. Over the past year or so I get deep aches and pains from my shoulder down to my feet my left side being more so pins and needles I can't lean on my left elbow as my little finger and part of my arm goes totally numb. Sometimes it gets so bad I cannot function. My legs are also a problem I get funny feelings in them and feel the need to constantly be moving them. Any advice would be great I don't know where to start at the doctors I also had to request a b12 test 4 years ago after much reading as I thought I had ms my results was very low.

10 Replies

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  • Tobesngem,

    If you post your recent thyroid results and ranges and any results and ranges for B12, folate, ferritin and vitamin D too, members will advise whether you are optimally medicated.

  • You have Restless Leg Syndrome! Have you tried taking magnesium? Have you had your ferritin tested?

  • I was reading up on that. I don't take magnesium at the moment. My ferritin levels was fine when last tested about 3 months ago.

  • Try some magnesium, then. Most people are deficient, anyway.

  • Welcome to our forum and a couple of hints below,

    Blood tests for thyroid hormones should be at the very earliest and fasting (you can drink water).

    Allow 24 hours gap between levo and the test and take it afterwards. This allows TSH to be at its highest as doctor usually only take notice of the TSH.

    Levothyroxine should be take with one full glass of water and wait about an hour before eating.

    You can also take it at bedtime if you prefer, and you should las have eated about 2 to 3 hours previously.

  • How often do you get your Vit B12 jabs? It sounds to me like you may need them more often.

  • I am ment to have it every 12 weeks but have it every 10 as symptoms start coming back.

  • Should be once per week to build up levels and then once a month after that indefinitely. That's the protocol here in Canada. Not every 12 weeks that's for sure.

    You can self administer.

  • unfortunately 12 weeks is the protocol in the UK - where hydroxocobalamin rather than cyanocobalamin is used. Though reality is that maintenance should be as frequent as required to keep symptoms at bay - which is generally a lot less than 12 weeks. Some GPs in UK are sympathetic and will provide injections more frequently.

    If you have neurological symptoms then actually the correct treatment would be injections every 8 weeks but even that is generally not enough for many.

    You can self administer in the UK but sourcing extra B12 in the UK is very difficult because it is prescription only. Tobesngem - are you a member of the PAS forum? which is focused on B12 absorption problems - huge overlap with symptoms of thyroid and quite common for people to have problems with both.

    healthunlocked.com/pasoc

    restless leg syndrome is a classic symptom of B12 deficiency ... along with a load of other things.

  • I will join to the pas forum thank you for that. Just want as much info and help as possible I can't carry on like this all the time.

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