muscle aches and pains: I have been taking... - Thyroid UK

Thyroid UK

137,936 members161,765 posts

muscle aches and pains

Na68 profile image
Na68
8 Replies

I have been taking thyroxine for over 20 years over the last 2 years I have had bad muscle aches in both my hips and also muscle pain in my arms. GP has done test and X-rays which have all been clear. I have been looking at my TSH levels over the years and between 2011-2020 my TSH levels were higher 9.3, 3.5, 3.9, 2.7, 9.6, then slowly over the years my levels have dropped to 0.03, 0.1, 0.9, 0.03.

Could anyone tell me if this could be a cause for muscle pain?

I currently take 125mg of thyroxine.

Thankyou in advance for any replies

Nat

Written by
Na68 profile image
Na68
To view profiles and participate in discussions please or .
8 Replies
SeasideSusie profile image
SeasideSusieRemembering

Na68

Has anything changed recently?

Change of brand of Levo?

Have you started to take statins?

Have you tested Vit D? Low Vit D can cause muscle and joint aches and pains.

Na68 profile image
Na68 in reply to SeasideSusie

Hi

No nothing changed and no statins my Vit D was low and have been taking prescribed supplements.

SeasideSusie profile image
SeasideSusieRemembering in reply to Na68

How low was Vit D?

How much D3 are you taking?

When was it prescribed?

Needs to be retested every 3 months until you reach the level recommended by the Vit D Council, Vit D Society and Grassroots Health (100-150nmol/L) and the twice a year with seasonal change to dose if necessary to maintain good level. Private testing if necessary as most GPs reluctant to test Vit D.

Are you taking D3's important cofactors - magnesium and Vit K2-MK7? Doctors don't know about these so we have to obtain them ourselves.

D3 aids absorption of calcium from food and Vit K2-MK7 directs the calcium to bones and teeth where it is needed and away from arteries and soft tissues where it can be deposited and cause problems such as hardening of the arteries, kidney stones, etc. 90-100mcg K2-MK7 is enough for up to 10,000iu D3.

D3 and K2 are fat soluble so should be taken with the fattiest meal of the day, D3 four hours away from thyroid meds if taking D3 as tablets/capsules/softgels, no necessity if using an oral spray.

For Vit K2-MK7 my suggestions are Vitabay, Vegavero or Vitamaze brands which all contain the correct form of K2-MK7 - the "All Trans" form rather than the "Cis" form. The All Trans form is the bioactive form, a bit like methylfolate is the bioactive form of folic acid.

Vitabay and Vegavero are either tablets or capsules.

Vitabay does do an oil based liquid.

Vitamaze is an oil based liquid.

Another important cofactor is Magnesium which helps the body convert D3 into it's usable form.

There are many types of magnesium so we have to check to see which one is most suitable for our own needs:

naturalnews.com/046401_magn...

explore.globalhealing.com/t...

and ignore the fact that this is a supplement company, the information is relevant:

swansonvitamins.com/blog/ar...

Magnesium should be taken 4 hours away from thyroid meds and as it tends to be calming it's best taken in the evening. Vit D should also be taken 4 hours away from thyroid meds. Vit K2-MK7 should be taken 2 hours away from thyroid meds. Don't take D3 and K2 at the same time unless both are oil based supplements, they both are fat soluble vitamins which require their own fat to be absorbed otherwise they will compete for the fat.

Don't start all supplements at once. Start with one, give it a week or two and if no adverse reaction then add the next one. Again, wait a week or two and if no adverse reaction add the next one. Continue like this. If you do have any adverse reaction then you will know what caused it.

greygoose profile image
greygoose

Good idea to get zinc tested, too. Low zinc can cause muscle pain.

But it has nothing directly to do with the TSH. TSH doesn't make you feel anything whether it's high or low. On the other hand, low T3 will cause all sorts of problems. Have you had that tested recently?

Na68 profile image
Na68 in reply to greygoose

I’ve had a good look through my test results over the years and no mention of T3, only results for TSH and T4 levels. Thanks for the zinc information I will look into that.

greygoose profile image
greygoose in reply to Na68

FT3 is the most important number although doctors rarely test it - or the labs refuse to do it - because they don't know what it is. T3 is the active thyroid hormone. T4 is basically a storage hormone that doesn't do very much until it is converted into T3. It is needed by every single cell in your body, and if there's not enough to go round, all sorts of symptoms can appear anywhere in the body.

Not everybody is very good at converting T4 to T3 but the only way to tell how well you convert is to test T4 and T3 at the same time and compare the results. It would be a good idea to get full thyroid testing privately:

TSH

FT4

FT3

TPO antibodies

Tg antibodies

vit D

B12

folate

ferritin

and zinc if possible. :)

Khami profile image
Khami

I’ve recently started having numbness and pain in my legs and certain amount of weakness, but this has only started happening since Covid injections, so unsure as to the cause has anyone else started same issues after jab ?

arTistapple profile image
arTistapple

Not specifically after the jabs but although I am on a steady levo, my muscles are getting worse. I know for sure I am under medicated but not quite sure which route to take right now. I can’t help thinking if you have been ‘steady’ for some years you would benefit from a thorough range of blood tests etc. Things change!

You may also like...

Joint pain and muscle ache in hips, knees and legs

for 4 years and trying T3 but getting severe headaches. I'm feeling pretty well apart from hip...

Muscle stiffness, aches, joint pain, tender knees

joint and muscle pain had massively improved apart from a cracking grinding back, I did have to...

Levothyroxine and muscle aches back bone pain :(

everyone ....I know I have been posting here a lot these couple of days.I have been on...

Levo and muscle pain/ache

are burning and arms in pain .The pain and muscles iare getting more painful more and more :( this...

Levothyroxine and joint pain muscle aches

I have been on Levothyroxine 50mcg for more than a month since I started withthin a week my muscles...