NDT not working for me : Hey guys, I've been... - Thyroid UK

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NDT not working for me

12 Replies

Hey guys, I've been taking NDT but it doesn't really seem to be working for me. This is my 2nd trial on it, as I've already taken it before for a trial of about 3 weeks. Neither seem to be working. Does anyone have any advice for me? My diet is good, I've eliminated all sensitivities... I just don't know what can be wrong.

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12 Replies
greygoose profile image
greygoose

You're not giving it enough time. Three weeks is nothing in thyroid terms. It's not an instant fix.

And, perhaps you're not taking enough. How much have you been taking? Have you been increasing by half a grain every two weeks? Have you had any labs done since you started it?

Do you have any nutritional deficiencies? It doesn't matter how good your diet is, if you are hypo, you are likely to have problems digesting and absorbing nutrients, leading to deficiencies. And, if you're deficient in anything, NDT just will not work for you.

marsaday profile image
marsaday

When you say it doesn't work, do you feel no difference at all. Or do you feel a little worse or a little better ?

What dose of NTH did you start on and what dose have you increased up to ?

Have you used T4 only before or T4 and T3 ?

SeasideSusie profile image
SeasideSusieRemembering

Hidden How long have you been taking it?

Your first trial of 3 weeks was nowhere near long enough to know if it would work for you, you wouldn't have given enough time for increasing gradually (usually every 2-3 weeks) to find your optimal dose.

shaws profile image
shawsAdministrator

It would be great if hormones worked so quickly but it is 'slow and gradual' usually till we reach a 'spot' which removes clinical symptoms and feel well.

I assume you were taking levothyroxine initially and what dose were you taking before you switched to NDT. What dose of NDT are you taking at present?

web.archive.org/web/2010112...

I had to try a couple of NDTs.

Jazzw profile image
Jazzw

You're not giving us much to go on.

How much NDT are you taking? How long have you been taking it? What were you taking before? Do you have any recent blood test results to share? What are your B12, Vit D and ferritin levels like?

We love to help, but it's impossible to do so without more info I'm afraid.

galathea profile image
galathea

What brands have you tried? I fail miserably with both ThyroidS and Erfa but do well with nature-throid and thiroyd...

Xx

Hey sorry about the lack of info, I'll try and give you as much as I can...

Right now I'm going to test my cortisol levels, we think it might be my adrenals :/

bunnywhisperer profile image
bunnywhisperer in reply to

I thought I'd pipe in to say that NDT didn't work for me. I gave it plenty of time (over a year), but have found out that my body doesn't like any form of T4. So, if you give it a good amount of time, your adrenals are up to scratch, and all your other levels are good, maybe anything with T4 won't work for you either. I should note, that I seem to be rare, so it's unlikely that you are in that boat, but thought I'd mention it just in case :-)

Jazzw profile image
Jazzw in reply to

Well, maybe. But don't jump to conclusions, rule the more obvious stuff out first. How much NDT have you been taking?

silverfox7 profile image
silverfox7

It took me a God six months to feel I really knew what was happening. I also went up a little too high so dropped down a bit and nailed it! With similar symptoms it's sometimes difficult to tell. Prior to changing I'd spent best part of a year improving my general health and thyroid health so yes, everything in the Thyroid world moves very slowly so a huge amount of patient is needed but keep asking for help and posting g any results with the ranges and there are many who can help you. Remember though we all all different so sometimes it takes longer for some than others.

Hi I have been on NDT since June. It took 3 months before I sorted the right dose. I take 2 grains one early morning and the other after lunch. They should not be taken close to meals. I leave 1.5 to 2 hours in between eating and taking NDT. How exactly do you feel?

Wolfiesmom08 profile image
Wolfiesmom08

It took three to four months for it to kick in for me but then even after nine months I never felt great. That's when I began reading Barbra Loungeheeds book The Tired Thyroid. My doc added more T4 to my NDT and I feel much better, stronger until my period comes along and I feel crummy. My ferritin is also really low so I still don't feel great but I feel good most of the time which is so much better than when I was on NDT only. It's tricky to put all the puzzles pieces together. Good luck and stay hopeful.

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