Addison disease

[mark_the_rocker_85]

Hi everyone I've just been disdose with Addison disease. At the moment I m taking prednisone tablets. I m taking 8 a day. I am going again to my doctoer to get some permanent pill. I am still feeling dizzy when I get out of bed and I m very tired. I have got a pain in my right side of chest i hope I be OK .

[shaws Administrator]

Welcome to our Forum mark_the_rocker_85

I don't know much about Addison's disease but have just read that it is rare condition of the adrenal glands.

Someone who has better knowledge will respond but, in the meantime, this is a link:

nhs.uk/conditions/Addisons-...

[mark_the_rocker_85 in reply to shaws]

Thank you very much

[Angel_of_the_North]

I had low adrenal function, but not actual Addisons and it took years to get to a state where I could usually guarantee to stand up without dizziness, and not to end up lying on the floor throwing up if I over did it. So you'll feel much worse than I did. Pred is quite strong stuff and some people do better on hydrocortisone. I found meditation helped too, and going gluten free. I expect they told you to take extra meds if you are physically or mentally extra stressed. Make sure you are eating enough salt. I drink lemon juice and salt in water every morning.

It will get better, but it takes time. Someone esle I know has had Addisons since he was a teenager and has the energy to run a bathroom and kitchen business - so there is hope.

[mark_the_rocker_85 in reply to Angel_of_the_North]

Oh good atm I m getting better with these tablets they gave on Saturday for a week. I only found about on Friday night when the doc my gp found something in my blood. So that led me to A/E For 8 hours to found out what it really was. Not in much pain Had dizziness and tired. Hopefully get things sorted with the doctors on Thursday and will get permanent tablets ...

[Annie007]

Hi mark

I have Addison's and Graves' disease

(Graves has been treated with RAI, so I'm now hypo)

I take hydrocortisone (split 10/5/5mg)

And flurocorisone 0.1mg

The flurocortisone stops the the dizziness by increasing blood pressure, which is otherwise very low with primary Addison's

Hopefully when you're on a good drug regimen you'll start to feel a lot better

Anne

[mark_the_rocker_85 in reply to Annie007]

Thanks for replying I am going on Thursday to get permanent medication. I have a slight pain on my right kidney. But I am feeling better everyday with the tablets they gave me for a week. Any advice for my disease I would be very grateful.

[Hidden]

Have a look on here & join to find out more information. addisons.org.uk/index.php/i...

[swalls48]

Hey Mark, I figured I would throw some info your way. Let me know your current treatment and full diagnosis (primary v secondary) and I can provide more insight. I have read every resource available concerning our affliction.

If you suspect you have Addison disease refer to this text to learn more on "Early Detection and Treatment Principles". This is the single, best resource I have found for a newly diagnosed patient. You will not be disappointed by this one!

aafp.org/afp/2014/0401/p563...

If you currently have Addison Disease and suspect your treatment could be modified for better results consult this resource.

***Pay attention to information highlighting the possible under-treatment with mineralcorticoid therapy. I have a theory that many patients are prescribed too much Glucocorticoids and not enough Mineralcorticoids. The excess GCs will mask the need for increased MCs in bloodwork. Excess GCs will cause Cushings like symptoms.

ncbi.nlm.nih.gov/pmc/articl...

For information involving the genetic/hereditary nature of Polyglandular Autoimmune Syndromes consult here:

scielo.br/scielo.php?script...

For a quality case report on Schmidts syndrome (PAS Type II) see here:

jofem.org/index.php/jofem/a...

For a interesting look at the relation of EPO deficiency and autoimmune disorders see here:

onlinelibrary.wiley.com/doi...