Thyroid UK
84,170 members99,153 posts

Hashimoto disease

Hi I was diagnosed in 2005 after suffering since I was 17. I am now 62 and was diagnosed in 2005 by a private endo. My life has been totally ruined as my education an social life stopped because of panic attacks and agoraphobia. My tests always came back normal for thyroid and my GP had said I had all the symptoms of thyroid disease but because my tests said I was normal. Yesterday I visited a new younger go and asked for an antibodies test and I was told there was no need as there will always be antibodies. Can't believe it. So I have ordered a private test and will post results. I stopped taking levothyroine as it is useless. I am determined to get some help as I approach retirement. A life destroyed by incompetent doctors and government guidelines. Thank you for any advice you can give me.

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When you get your test results post them with the ranges for advice."Normal" just means within range but that may not be optimal for you.

How much levo were you taking since 2005?

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was put straight onto 150 mcg, but I now just take 100 mcg, and was told on my last check up with an endo about 10 years ago, to go away and enjoy life>

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You are probably undermedicated, pist the results in a new post when you get them even if "normal".

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What is the point of wasting our time when the person whom we expect to know to have the knowledge to make us well have no answers. It is devasting when we expect the professionals to be aware of clinical symptoms and realise they don't and we have to be searching the internet for help/advice.

Remember to get the blood draw at the very earliest, fasting and if you were taking thyroid hormones, you allow a gap of 24 hours between last dose and test and take afterwards.

Please get a print-out from the surgery of your last test results (unless you had them later in the day as early a.m. is best) with the ranges and post them for comments. If you don't have a copy, put your new results on a new post.

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I have just sent them to Thriva this morning, no tablets taken and no food when I completed the test.

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Tell you doctor that yes, there will always be some antibodies, but that's what ranges are for, to show what's normal and what isn't. Does he understand ranges?

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I thought being a new doctor in our practice she would be more open minded, but the didn't seem to want to deal with it My antibodies when I was diagnosed were over 600.

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Are you sure she didn't mean that because you have already had a result with high antibodies a further test would not be needed as you will always have antibodies?

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No, when I asked the endo that diagnosed me in 2005 about how many antibodies I was meant to have,and he said none. Another locum GP told me the same, also said that my very high cholesteral was probably because of the thyroid problem

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Thriva have given me results for a basic test, but they charged me more because I was asking for my antibodies, but they haven't done them. Have got in touch with them to find out why I was charged an extra £14.50 but never got the results that I wanted

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