Newbie: Hi, UAT stable on 100mcg for 28 years... - Thyroid UK

Thyroid UK

141,243 members166,489 posts

Newbie

16 Replies

Hi, UAT stable on 100mcg for 28 years then MENOPAUSE. Had dose changed every 8wks. Too high, too low, inflammation levels sky high, then go back down. Frozen shoulders injected with steroids, one twice. Doc says no connection to thyroid. Dose now 50mcg, blood test due. Quit gluten/dairy/soya about 2 yrs ago. Any other suggestions welcome if it means not ending up in casualty with heart racing or feeling like a zombie. Sorry about long post.

Read more about...
16 Replies
Clutter profile image
Clutter

Welcome to the forum, Little-Lucy07.

If you post your thyroid results and ranges (figures in brackets after results) members will be able to advise whether you are optimally medicated.

Low iron can cause a racing heart and palpitations too. Ask your GP to test ferritin, vitamin D, B12 and folate which are commonly low in hypothyroid patients and can cause musculoskeletal pain, fatigue and low mood similar to hypothyroid symptoms.

in reply toClutter

Hi, iron levels are ok, I take vit D so they're ok too. Doc says all blood results except thyroid are normal. Having blood test today for thyroid so will see what they are this time.

Marz profile image
Marz in reply to

Also obtain copies of the results your Doc said are OK. They may be in the range - but where they are in range is so important - so what he thinks are OK are possibly not :-)

We see this problem here on the forum all the time - and I have been here for over 4 years - others a lot longer.

How much VitD are you taking ? Having the tests suggested by Clutter above are also important. Do you have Hashimotos ?

verywell.com/thyroid-patien...

The above link is an article about thyroid and shoulder issues and the connection.

in reply toMarz

Taking 5000 a day vit D as had fibromyalgia when it was low. Iron was 5 but now 11.5. Not sure about any others as was fobbed off with they are ok.

Marz profile image
Marz in reply to

If you click onto my name above - you can read my Profile and of my Edited journey to wellness. Fibro diagnosed in 2000 - Hashimotos in 2005. It hasn't been mentioned since ! - but discussed on this forum a great deal. Low T3 seems to be one of the causes - and when the thyroid has been under-treated for too long then the adrenals become stressed.

Is that Iron or Ferritin - stored Iron ?

Did you look at the link I posted for you - about thyroid and fibro ?

in reply toMarz

Yes read the link, thanks. Never told anything about iron levels other than the number.

Clutter profile image
Clutter in reply to

Little-Lucy07,

Normal is an opinion. Best to get into the habit of asking for your results with the lab ref ranges so you can check whether blood results are optimal.

in reply toClutter

Will be doing when today's come back.

Apparently my TSH is now 26 so doc wants me to take 75mcg now

Marz profile image
Marz in reply to

People will not see this post - if you would like some replies it would be best to start a new thread. Did you manage to obtain copies of all your results as suggested by Clutter .....

I only spotted your reply by chance.

Your TSH is VERY high or did you mean 2.6 ?

in reply toMarz

Definitely 26, was 3 eight weeks ago. Only had TSH done as doc won't do anything else as says not needed. Did persuade a locum to do them once and she said they were all within range. Only had them done once in 30 yrs. can't change doc as no other for miles.

Marz profile image
Marz in reply to

Any chance of having tests done privately through Thyroid UK with Blue Horizon ? Many people here on the Forum have the finger prick test kits sent to their homes. Results within a couple of days by e-mail. I think Clutter was meaning other test results like Ferritin - Folate - B12 - VitD and so on.

in reply toMarz

Is it expensive?

Marz profile image
Marz in reply to

Go to the main website of Thyroid UK and click onto Private Testing and then Blue Horizon. Prices should be there. Thyroid 11 is popular I believe.

thyroiduk.org

Clutter profile image
Clutter in reply to

Little-Lucy07,

As TSH is 26 you can be sure that FT4 and FT3 are low. The dose increase to 75mcg will help but you should be retested in 6-8 weeks as you will need further dose increases until TSH is 1.0 or lower.

Clutter profile image
Clutter in reply toMarz

Thanks, Marz.

Not what you're looking for?

You may also like...

My vit D has shot up to 169, is it too high ?

I was at a measly 27 three months ago and started a high dose 9000iu per day on docs instructions...
Avalynd65 profile image

Newbie

Hi I have never written on a forum before. I have been on levothyroxine for 5 years for...
Pinkbee profile image

Newbie

Hello I am 29, new and feeling very unwell. I have symptoms of angina, sluggish bowels, loss of...
Adanna19 profile image

Newbie

Hi I've recently had some blood tests done with BH as I have been struggling to lose weight for the...
Justliloldme profile image

Newbie help please!

I was diagnosed with underactive thyroid 3 months ago whilst have blood tests for something else...
maddy01 profile image

Moderation team

See all
SlowDragon profile image
SlowDragonAdministrator
Jaydee1507 profile image
Jaydee1507Administrator
RedApple profile image
RedAppleAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.