I was diagnosed with Grave's disease 2 years ago. I had 20 months on Carbimazole which I tolerated well. For the last 6 months I was on a maintenance dose of 5mg with a TSH of around 2 and T4 between 14 and 15 and felt fine. I was taken off the drug 2 months ago and my TSH has decreased with each blood test but my T4 has remained stable. Recent results are TSH 0.28 (0.35-5.5), T4 14.6 (10-19.8) and T3 5 (3.5-6.5). I feel hyper - palpitations, anxiety and fibromyalgia flare up. In fact, I feel awful. My NHS consultant says that my thyroid levels are normal and she doesn't need to see me for 2 months. I commented on my decreasing TSH and she said that they only look at the T4 and T3 and they are normal. Surely my TSH levels show that I am heading for a relapse? If this is the case I would like to go back on the carbimazole but the consultant said that this is not an option as it destroys the bone marrow.
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