Hi, I have been unwell for more than a decade (diagnosed and dumped onto the fibromyalgia shelf, which of course covers all health issues) but was diagnosed a year ago with hypothyroidism with a TSH of 39. The symptoms were always there, and I had asked for thyroid tests, and was told it was normal. I have now discovered I had a high TSH result of 6.8 way back in 2010 which was completely ignored even though I had classic thyroid symptoms.
I have been declining in health for over a decade but the last 3 years I have been getting worse progressively faster. I've been on Levothyroxine for a year now and have only got worse. I actually ended up begging my doctor to read up on a lot of the controversy concerning thyroid diagnosis and treatment and try to help me get NDT, even with a private prescription.
I gave her a copy of Dr John C Lowe's paper 'Stability, Effectiveness, and Safety of Desiccated Thyroid vs Levothyroxine: A Rebuttal to the British Thyroid Association', which she never looked at.
She did write to the endocrinologist about NDT; I had already warned her what the response was highly likely to be, but to be honest I certainly didn't predict what he had to say. I expected what he said about 'no evidence it is any better than Levothyroxine' and 'unlicensed', but what she took as the most important reason for not prescribing
NDT was the risk of virus transmission!
I am so disgusted that as far as I can see I am being denied medicine that might give me my life back, because of something that I can find no evidence of whatsoever.
But I thought I'd better check that I'm not missing something.
So I would really appreciate it if anyone can tell me how long NDT has been around and although probably highly unlikely, if there have been any cases of people catching virus from their meds please?
Thank you in advance.
Later Edit; I would like to apologise for writing this question and then not being around to answer the questions. I've been really unwell on top of the initial computer problem that stopped me in my tracks. Now I have a heap of things to catch up on. So I will come back to this very soon. Thank you for all the answers which I've not even managed to finish yet...