Thyroid UK


Do Endo's and GP's recognise pooling or do they think its something we just found of the internet ?

I have DR's again today hoping to get my blood test results from two weeks ago but then i felt hyper, now i feel hypo because i have reduced levo myself big mistake, when i try and raise it up or take it regular i get blurry vision, vertigo heart palpitations, diarrhea and thumping headache

but im getting fatigue set in, dry skin my hair coming out in clumps rosacea has flared up and feeling down and teary

6 Replies


A common reason for feeling hyper with hypo bloods is having low iron/ferritin. Ask your GP to check.


ok thank you


Are you still stuck on PPI (omzeprol) - if so have you had B12 checked, are you supplementing?

PPi's really reduce uptake of B12

PPi's also lower magnesium - which we need to use thyroid hormones

Are you sure it's not low stomach acid (common if hypo)

common to be low in vitamin D too - have you been tested? Needs to be around 100

Do you know if you have Hashimoto's (high antibodies) - if you do then you may find adopting 100% gluten free diet can really help reduce symptoms, and lower antibodies too. Selenium supplements can help too


My dr's wont test vit D and my dr wont test me for which kind of thyroid condition i've got as she said there's no point as i will recieve the same treatment

i do take ppi for a hiatus hernia ive tried coming of them but the pain in my stomach was unbearable and since going hypo if i end up on my front in my sleep im woken up by chocking on stomach acid

I was diagnoised with CFS in January because my bloods were normal but the fatigue was off the scale i would take my son to school and then sleep till my alarm went off to pick him up then around june the fatigue slowly started to lift till i felt some sort normal but had the most awful brain fog my memory was that bad i was worried some kind of early dementia was setting in really bad blurry eye sight vertigo i had always taken my levo properly first thing on an empty stomach because of time and getting kids to school it would be 3 hours before i ate or drank anything besides water and longer for other vitamins

I missed a couple of doses and realised i felt better, better sight and less brain fog so missed more doses 2 or more a week of 75mg (wrong i know) started to get symptoms so decided so pull my socks up and take it properly and then after 2 weeks i was sweating losing weight vertigo blurred vision headaches couldn't sit still felt more and more excited each day dr said it wasn't hyper so decided to reduce down to 50mg which was fine then i started to get hyper symptoms again so skipping doses again and feeling better but going hypo

I took myself to an optician explained it all to her she has said my eyesight is fine and emailed the dr and that is why i've got the drs today they are calling me in just want something else besides levo and prove i have'nt got chronic fatigue syndrome

sorry for the long reply


If you can afford the £99 get full blood test from Blue Horizon (might be £89 with Thyroid UK discount voucher)

Blue Horizon - Thyroid plus eleven tests all these.

This is an easy to do fingerprick test you do at home, post back and they email results to you couple of days later.

Usual advice on ALL thyroid tests, (home one or on NHS) is to do early in morning, ideally before 9am. No food or drink beforehand (other than water) If you are taking Levo, then don't take it in 24 hours before (take straight after). This way your tests are always consistent, and it will show highest TSH, and as this is mainly all the medics decide dose on, best idea is to keep result as high as possible

If you have Hashimoto's then you may find adopting 100% gluten free diet can help reduce symptoms, and lower antibodies too.

You do not need to have ANY obvious gut issues, to still have poor nutrient absorption or low stomach acid or gluten intolerance

GP's fail to recognise gut, gluten or digestive aspects of being hypo

If you search low acid on here you will see masses of postings. Lots of people are stuck on PPi's.

Taking Levo at bedtime may work better - have you tried it?

Long research article - final conclusion paragraph below

"In conclusion, bedtime intake of levothyroxine in our study significantly improved thyroid hormone levels. This may be explained by better gastrointestinal bioavailability at night or by less uptake interference by food or medications. As shown in this study, bedtime administration is more convenient for many patients. Clinicians should inform their patients about the possibility of taking levothyroxine at bedtime. A prolonged period of bedtime levothyroxine therapy may be required for a change in QOL to occur."


Thank you for replying

The dr i saw this afternoon was brilliant my blood test turned out im hypo which i knew by how im feeling

i've agreed to take 25mg every morning for the next 4 weeks and then have another blood test he agreed to vit B12 and Vit D (so excited about this as other drs in the practice have refused) full blood count , serum ferritin serum folate and TFT he listened to me which has been the best thing ever

i told him how the levo makes me feel he said the trouble is there isn' anything else apart from levo and if he makes an referral to an endo now they will just say i need to increase my dosebut if i still feel weird in 4 weeks he will contact the endo and see if there is anything else that can be done for me just hope the endo takes me seriously if it comes to that he also said i might have to alternate a dose on different days

I did try taking my levo at bedtime and i suffered with insomnia and very restless but have agreed to take it first thing in the morning on an empty stomach have to prove to the dr's that i am willing to work with them after i haven't been taking it properly thank you for all your advice i really appreciate it i think the forum and people like yourself do an excellent job and so pleased i have somewhere to go


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