Activis levothroxine causing muscle pain - Thyroid UK

Thyroid UK

141,240 members166,488 posts

Activis levothroxine causing muscle pain

Gcart profile image
7 Replies

Hi I have been messing around with my meds. Went back on Levothyroxine this am and had the most awful muscle pains for about 3 or 4 hours about 5 hrs after taking the dose. I definitely have a pattern now and it must be the T4 levo.

So I could try another brand if that if possible , maybe not, like asking for the moon🙄

Even if doc prescribed I have to get it out of the chemist. Was told by Lloyds any others are too expensive.😒

Any thoughts or is it to be T3 only. Resisting it a bit, worried about being in hospital because I have had pneumonia 3 times in last 18 months. Quite out of the blue each time and very painful. Not sure of my position in the case.

Sorry to be a pain no where else to turn. Any reassurances gratefully received

Thank you for any encouragement you can g I've me xxx

Written by
Gcart profile image
Gcart
To view profiles and participate in discussions please or .
Read more about...
7 Replies
foreversummer profile image
foreversummer

Hi Gcart

Activis gave me terrible muscle aches in my legs to the point where I had to stop walking, I just couldn't carry on, and I'm usually pretty fit. Took me a while to catch on to what it was but within a day or so of going back to Mercury Pharma is was fine. This was about two years ago and never had anything like it since.

Foreversummer

silverfox7 profile image
silverfox7

Have a word with your pharmacist. They may recommend one they can get easily. If that works ask you GP to name it on your prescription.

Gcart profile image
Gcart in reply tosilverfox7

Thanks for your replies silver fox 7 and forever summer I shall go to the chemists today and see if I can get help with another brand to at least try.

Sandra600 profile image
Sandra600

I had terrible muscle pain in my arms, neck and shoulders with activas. My GP thought I had fibromyalgia. I am much better now on Mercury Pharma.

daivuciukas profile image
daivuciukas

I had the same problem, with actavis, orible muscle cramps and joint pain, also headache, diarrhea. My bones was doing cracking sounds.

veryangirl44 profile image
veryangirl44

Hi is activists same as actives please almost pharmaceutical please if so image been suffering extremely painful muscles for many years now the drs are putting it down to fibromyalgia. Which I don't believe. How do I get to swap to mercury farms. Plus I have just noticed some of my dosage since agreeing to reduce tablets every other day some are activists and some are mercury it's all over my head

Gcart profile image
Gcart

Yes veryangirl44. I think it is the same brand of levothyroixine.

I'm only going by trial and error. Muscle pain,very bad, when taking them. When I left them off it stopped hurting very quickly , tried again Tuesday this week same thing that very day.

Today I have taken 25mcg x 3 and have been OK today.

The 25mcg levothyroxine are made by a different company . Tablets are upstairs so just guessing the name is beginning with Woc?? Will post when I check. Will take a bit more trial and error but I am hoping I am on the something.

How many people are putting up with these problems and being diagnosed with fibriomyalgia ,or anything else for that matter, when it could be put right this easily !!!

I will continue with experiment and post to let others know.

It may well be just me and a few others who experience this but hope to help with my personal trials .

If this proves to be the case I shall insist on being prescribed 25 mcg as activis don't make that dose . Taking 3 at once is a small price to pay for a bit more quality of life with this thyroid disease. Or my case TT after cancer .keep searching everyone and change things !!xx

Not what you're looking for?

You may also like...

Pain with Levothroxine

Hi everyone, I am in urgent need of advice. I was diagnosed in 2013 hypothyroid and prescribed...
maplewood profile image

Muscle strength/pain

Can anyone help me out or point me in the right direction here? I’ve posted numerous times about my...
Murphysmum profile image

muscle pain after thyroidectomy

hi all, I had a full thyroidectomy on the 17th of April this year. The recovery has been a bit...
Chara87 profile image

Muscle pain

Does anyone else suffer with muscle and joint pain with their hypothyroidism? The reason I ask is...
Kimkat profile image

Muscle pain diagnosis

Hi All, I posted a while back about suffering with body pain and linking it to starting t4-t3...
misschris profile image

Moderation team

See all
Jaydee1507 profile image
Jaydee1507Administrator
SlowDragon profile image
SlowDragonAdministrator
RedApple profile image
RedAppleAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.