Hello all

Sorry it's been a while since I posted. I'mgoing through a very tough patch & need some advise.

I've been very tired & had frequent headaches, which won't go away with any paracetamol. I have been feeling dizzy & sick again & I'm frightened of going through the health breakdown I had at the beginning of the year.

I had an awful reaction to something I ate on Tuesday (being sick & diarrhea) and it took a couple of days to get over it. ( I know what caused it, in my foggy state I'd misread a label - note to oneself...get someone else to check !!)

In addition I've not been sleeping well & strangely for me I've able to keep going! Normally if I don't sleep I'm a quivering wreck.

I'm taking my supliments & 125mcg levo, but I'm really not right & so I'm considering either adding t3 or trying ndt. I know the doc won't give me the t3, so I'll have to purchase my own. Trouble is I'm not at all up on these medications & don't really know if they'd help or if I need to up my levo??

Any help appreciated as always


6 Replies

  • If you've not had a recent blood test I'd advise you ask your GP for a Full Thyroid Function Test as you've not been feeling well recently and are symptomatic.

    Or you can have a private test from a recommended lab and a small discount and Thyroiduk.org.uk also get a small sum.

    The most important hormone and the only active one is T3 (liothyronine). As the GP prescribes T4 I'd try adding T3 first to your T4. I believe doctors in the UK are being directed not to prescribe T3 (for some unknown reason but the real answer is that it has become prohibitively expensive.

    Levothyroxine and liothyronine (T4 and T3) are not medications they are hormones necessary for good health but we assume they are medications because we get a prescription. :)


    Request TSH, T4, T3, Free T4 and Free T3 and if you have not had antibodies tested I'd ask for these too. Ask GP first and say you are learning how best to get back to normal health and that FT3 is the most important.

    I think you know the earliest time possible is best and its a fasting one but you can drink water. Also leave about 24 hours between your last dose of levo and the test and take it afterwards. If you've not had a recent blood test for B12, Vit D, iron, ferritin and folate ask GP for these too.

  • Thanks shaws, I'll order the tests- GP will do all except antibodies! 😑 but hey no ones perfect!

    As I have been OK on levo adding T3 seems logical to me too 🙂

  • Adding T3 is always a good idea. Maybe requires splitting doses, maybe not.

    ncbi.nlm.nih.gov/pubmed/864... suggests that it makes lower doses possible.

    dl.dropboxusercontent.com/u... in chapter 'The Future' tells among others how unnatural high ratio T4 to T3 inactivates the D2 deiodination ("conversion")

  • Thank you. Will read when I can see & absorb better.

  • So sorry you're feeling awful again :-( I think, that judging by peoples posts on here you will struggle to get T3 but obviously give it a try as I remember you have a fairly helpful gp don't you? If you decide to go down the ndt route and need some help just ask..I'm happy to share what I've learned whilst self medicating. Things still not perfect for me..ups and downs..but on the whole they are improving and I'm confident that I will get back to 100% (or near enough) on Nature-throid x

  • Thanks NatChap i really appreciate the support. I know the GP (well 99.9%sure) will not give me T3, but you never know. If not I'll have to get it myself. I'll get some bloods done first & then look at my options


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