I had my first Rheumatologist appt last Thursday following my Endo referral. I was supposed to be seen by Mr A but was seen by a female consultant Ms RF K not much older than myself.
Straight away she was kind reassuring and got me some tissues for my tears. Fed up of feeling so ill I really am at rock bottom so to talk to someone sympathetic was a relief. She spent the time going through all my symptoms and gave me an examination. She requested a full panel of bloods and X-rays for chest, hands & feet. She's also requested an EMG & nerve conduction studies as at 43 my main concern is my chronic fatigue and muscle pain/weakness. Although overlooked as it took me 12 weeks to be seen following my referral she promised me she would see me again in 4 weeks (they have an 18 week timescale) I was reassured she would get to the bottom of my illness and get me a diagnosis. Such a relief as I am fit to collapse and feel my life is on hold. I'm on a leave of absence from uni and haven't worked since January when I started with thyroiditis. She did think it could be ceoliac disease although my blood test was negative - but I avoid it where possible so don't know why I'd still be so poorly and getting worse rather than better from both the levo and very minimal gluten in my diet.
Hopefully once I get a diagnosis I can finally get the treatment I need. Although if it means steroids then I'll have to deal with that if it happens. However seeing so many posts about the lack of support and understanding from some doctors and consultants I wanted to say that I'm grateful someone is now trying to help me! My GP is also understanding but seems to have very little knowledge to help me.
Maybe there is light at the end of the tunnel. And if I get a diagnosis I can finally understand what I'm dealing with and start to get better and live my life again!
So if you live in the South Yorkshire area Ms K at Hallamshire Hospital in Sheffield maybe worth trying to see. Fingers crossed for a positive outcome and getting me on the road to recovery. Keep positive everyone 😊