Recently diagnosed with hypothyroidism TSH 100 + & T4 4.5
On 75 levothyroxine
I've gone from not being able to walk up the stairs to supercharged Duracell bunny within a month!
Why are Doctors so clueless when treating - no info, no discussions just given medication and left to find out about it on my own.
Anitam49 Well, that sounds about right, typical of GPs not to offer any information. They don't know, they don't have a special interest in thyroid disease, they just follow the guidelines so can't give you much information. And if you don't conform to what they expect when on Levo you're up a gum tree!
I was diagnosed hypo over 40 years ago, never given any information then and it took the GP two years to even think about testing for hypo. Twenty years of dose changes without any explanation from different GPs. I then wondered why I was very unwell, had to take matters into my own hands and learn.
And it's not just thyroid. Last year I went to the surgery with what I thought was probably a prolapse. Locum had a look, printed me a sheet off the computer, handed it to me and said 'come back if you want the operation'. No explanation, nothing other than 'if it falls out, push it back'. Again, completely on my own, had to do my own research and find out what I can.
It's great that you feel so much better in such a short time, I hope it continues. Just make sure you have a repeat test 6 weeks after starting your Levo, book your tests for earliest possible appointment, fast from night before (water only) and leave Levo off for 24 hours (take it after blood draw). Also, take your Levo one hour before or two hours after food with a glass of water. It doesn't matter whether you take it morning or nightime, take it to suit yourself.
Come and ask questions any time, members here know much more about thyroid than doctors seem to.
Always get a print-out of your results with the ranges. Labs differ in their machines and ranges may differ. Also make sure the doctor doesn't stop an increase in dose if he/she says 'you're normal now' meaning your bloods have come within the range.
I also had the same TSH level as you. Ideally we feel best when the TSH is a around 1 or lower but some GPs don't understand and believe if we're anywhere in the range - even the top of it we're on sufficient hormones and they wont increase dose which means we can either remain symptomatic or feel worse.
A GP is just that a generalist therefore they have limited knowledge about a wide range of conditions.
In addition unless a GP or specialist has a condition themselves then they have absolutely no idea of the pain, suffering and impact on lifestyle it has. This is not helped by the majority of them coming from a particular privileged section of society, and in general not seeing as much suffering and disease around them growing up than if they weren't so privileged.
Totally confused and fed up
Fed up of heart palpitations
Just so fed up 🙄😔🙄
