Undertreated Thyroid is taking it's toll

It's not enough that I have to suffer with all the endless symptoms all the time, but now a few months ago It was finally picked up that I was going through an early menopause and now I am told that my bone density is low which will be leading to Osteoporoisis, but the treatment they offer apparently doesn't go well with Levo - so are the just going to leave me, does anyone have any helpful info please? I am feeling so miserable, I can't get in to see the doctor for five weeks.

Thank you

15 Replies

  • Have you had your vit D tested? It could be low. You need good vit D3 levels for good bones. Along with a lot of other minerals and vitamins. And, as you're hypo, these could all be low. But, I wouldn't suggest taking calcium supplements!

  • Morning Greygoose, had my Vit D checked last week (i requested it)

    the range was from 50 - 140 and my levels were 65.98 - the doctor said acceptable.

    I do take loads of supplements but not calcium - i was worried about geting kidney stones

  • And you were right to worry! :)

    These doctors make me laugh! 'Acceptable'? How about 'optimal'? Don't they realise we would all be much healthier if our levels were 'optimal' rather than just 'acceptable'?

    If I were you, I would supplement my vit D3, to get it up near 100. But, take some vit K2 with it, because the D3 will increase absorption of calcium from food, and the K2 will make sure it goes into your bones, and not your kidneys!

  • I've never seen you recommend taking calcium supplements before, greygoose, in fact quite the opposite!. Did you really intend to write that?

  • Oh, gosh! Thank you!!! That should have been a negative. Do not take calcium supplements!

    Post edited!

  • I took NDT and bisphosohonates together for years, no obvious problems between the two.

    NDT contains calcitonin, which is a hormone necessary for strong bones. Of course it is absent in levothyroxine, but is, apparently available separately - and is used to treat osteoporosis where the patient cannot tolerate bisphosphonates.

    If your GP isn't interested in treating you, then ask for a consultant referral. I went to a rheumatologist interested in osteoporosis, so you might need to do some research to find a suitable specialist.

  • Thank you Ruthi, I have got to have more blood tests done first - to find out if there are other causes for this, I think that will be a dead end but I don't want to upset them

  • Excellent Greygoose, thats brillant.

    Thank you : >

    I have had this deep ache for nearly two weeks now (it came on two days after the scan)

    do you think that is to do with lack of calcium?

  • Kitten, I made a mistake above. I meant to say don't take calcium!

    I have no idea if your pain is due to lack of calcium, but you could always have your calcium tested if you're worried. It could also be low vit D, which you can also have tested!

  • Thank you Greygoose : >

  • You're welcome. :)

  • Also consider magnesium supplement, especially if taking D3.


    Vitality calm magnesium powder is good, as can start very low and build up dose,

    Do you have Hashimoto's? If so have you considered leaky gut/gluten connection.

  • Morning SlowDragon,

    Thank you very much for your reply. I do have Hashimoto's? I also have Leaky Guten, I haven't touched gluten in nearly two years : >

    I take Magnesium Malate daily and my powdered vitamin C has magnesium in

    Thats an excellent article, thank you very much

  • I'd be very wary of taking calcitonin. If you read the BNF it says that calcitonin is no longer prescribed for the long term treatment of osteoporosis because it increases the risk of malignancy.


    Also, be aware that biophosphonates can lead to necrosis of the jaw. This happened to my mother and she had to stop taking it.

    Bone treatment for osteoporosis in the UK is based on improving calcium uptake and getting more calcium into the bones and getting it to stay there for as long as possible. It's a very one-dimensional view of what bones are made of. In healthy people bone is removed and replaced constantly. Treatment is also based on preventing the body from removing bone, so the bones look thicker, but consist of lots more old bone than would normally be the case. The result is that treated bones in people with osteoporosis tend to be very brittle.


    If you do any research into minerals and vitamins vital for bone health, any link you find which does NOT include magnesium is NOT complete.

    Some people have been helped by strontium supplements, but they aren't all recommended. I'm not actually familiar with anything to do with strontium, so do your research.

    Other links :


  • Thank you very much Human Bean, lots of helpful info

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