Post RAI high antibodies: Hello I am one year... - Thyroid UK

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Post RAI high antibodies

ravensgeo profile image
6 Replies

Hello

I am one year post RAI and self medicating on 2.5 NDT. Recently i have been feeling very unwell indeed,pain flare ups and more recently some pain in my neck. I was so concerned i had some private bloods done, I see my crp is high at 15 and both my thyroid antibodies are high one lot being at 4000. I was singed off by the endo months ago when she considered me stable on levo. I wondered if anyone who had RAI had pain int he next this far on and if any may had these high antibodies. Not sure what to do about them.

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ravensgeo
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shaws profile image
shawsAdministrator

I hope someone can answer your question. I would have thought RAI would have killed your thyroid gland and it therefore wouldn't be able to produce antibodies. Antibodies usually refer to Hashimoto's an Autoimmune Thyroid Disease.

Sorry I cannot be more helpful.

greygoose profile image
greygoose

Yes, I was going to ask : which antibodies? Did you have Graves or Hashi's?

ravensgeo profile image
ravensgeo in reply to greygoose

I was told i was overactive was on anti thyroid drugs for two years came off it went over again and was told that I must have RAI, I never had a scan or biopsy.my anti-thyroidperoxidase is 173.2 and anti- thyrogobulin abs is 4000. I find myself having to quell a little fear about all this. my crp is 15.

greygoose profile image
greygoose in reply to ravensgeo

Those are Hashi's antibodies, not Graves. Did you have Graves antibodies before when you were hyper?

ravensgeo profile image
ravensgeo in reply to greygoose

They never mentioned Graves to me.Just send i was overactive.i must try and find my first private tests from a few years back,

greygoose profile image
greygoose in reply to ravensgeo

Yes, because it sounds as if you were just having a Hashi's hyper swing. So, it's not surprising that the anti-thyroid drugs didn't help.

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