New here, oh my god more useful info than I can cope with in one go,

Bit about me, Born with CAH,been on HRT since 12 which is all fine nothing I can do about it and have learned to live with it. Was Hyperthyroid until about 10 years ago when I was diagnosed with Hypothyroidism, weight ballooned from 58Kg to 98Kg I'm on 125µg Levothyroxine every other day and 100 µg.

I see and endo once a year at the local hospital but never seem to get any sense out of them, mostly have to explain CAH to them as I never see the same one twice, after 50 years get a bit wearing.

My next appointments due in the next three months so I'm glad to have found this resource and I can go armed.

6 Replies

Sorry, but you have to explain CAH to me too. Or give a good link on the subject?

Welcome to the forum. :)

Congenital adrenal hyperplasia is group of inherited conditions that are present at birth (congenital) where the adrenal gland is larger than usual (hyperplasia). In CAH, the body is missing an enzyme (chemical substance) that stimulates the adrenal glands to release the cortisol hormone.

Congenital adrenal hyperplasia | Great Ormond Street Hospital

unfortunately that link seems to no longer work

Does this work?

Edit : Yes it does...

OK not the most reliable resource as I don't have access to medical libraries

Do you have a thyroid blood test done before appointments? If so, get a copy from your GP and start another thread with results (including ranges) and more knowledgeable members may be able to help.

Would it be helpful to print out some info on CAH and ask them to attach to your medical record?

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