New to site. Diagnosed hypo 2 year ago and rece... - Thyroid UK

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New to site. Diagnosed hypo 2 year ago and recently with copd I need educated

SlasJ profile image
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I am due my 2nd review diagnosed just over 2 years ago I have just learnt I am taking Lego totally wrong as not been taking it afhalf an hour before food. I have recently been told I have copd all of which came asca huge shock. Not coping with this news. I take 100mg of Levo. I still have a shocking sleep pattern but function well as in exercise daily. All this t3 and t4 means nothing and should I be watching my gluten intake. I need educated on hypo as I am completely in the dark about it all along with vitamin d and k and does the thyroid affect calcium and bones ? Just from snipers I have read. Thank you julie

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SlasJ profile image
SlasJ
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galathea profile image
galathea

Hi, Do you know that there is a website run in conjuntion with this forum? Suggest you start by having a look on there..... thyroiduk.org.uk/tuk/about_....

If your thyroid is low, it affects just about eveything.... When you go for you review, dont take meds for 24 hours before the lood test, dont eat on the morning of the test, get tested as early as possible and make sure you get all the results in writing

Xx g

shaws profile image
shawsAdministrator

If we want to get better we have to read and learn as most doctors aren't the most knowledgeable to do so.

As Galathea has said, all our body is affected from head to toe if our thyroid hormones are low, and we can get other more serious diseases if our thyroid hormones aren't at an optimum level.

Most doctors believe that if our blood test results are anywhere in the 'normal' range that we are on sufficient. That's not true, we have to have a TSH around 1 or lower.

T4 (also called levothyroxine) is an inactive hormone and is also called levothyroxine (a synthetic hormone). Thyroxine is our 'normal healthy' hormone which travels round our body and converts into T3 (liothyronine) which is the active hormone required in order for us to function normally/healthily. This is the most important hormone.

Ask your doctor for a full thyroid function test (probably wont) TSH, T4, T3, Free T4, Free T3 and antibodies. If you can afford a private blood test for those the GP wont do, we have a list of recommended ones and you get a small discount.

At the same time ask for Vitamin B12, Vit D, iron, ferritin and folate too, we need these to be towards the top of the 'range'.

When we exercise before being on the optimum of hormones for our bodies, and as we are replacing the hormones daily, it reduces our T3 which might have an effect on how we feel.

Always get a print-out of your blood test results for your own records and post if you have a query. Make sure the ranges are also stated as labs differ.

Follow Galathea's very important and I copy:

When you go for you review, dont take meds for 24 hours before the lood test, dont eat on the morning of the test, get tested as early as possible and make sure you get all the results in writing.

Also food interferes with the uptake of thyroid hormones so your stomach should be empty and take levo with 1 glass of water when you get up and wait about an hour (new recommendation) before eating.

If you prefer, you can take your dose at bedtime, as long as you've last eaten about 2 to 2.5 hours previously.

SeasideSusie profile image
SeasideSusieRemembering

Hello SlasJ - I'm glad you found your way here :)

I see you've already had great advice. Do come back with your results, see if you can get all the tests mentioned. You will gets lots of help here :)

Coastwalker profile image
Coastwalker

SlasJ, I see you have COPD, taking vitamin D3 and vitamin A with retinoic acid in it (not all vitamin A's have the retinoic acid,) can help 'some' people with Asthma, COPD, even Emphysema. Not saying it can help everyone, but it has helped my Mum with her COPD and also my Husband with his Asthma.

Vitamin A (retinoic acid,) in trials with mice created new air sacs in their lungs. There was a Daily Mail write up with the title 'Can vitamins cure Emphysema' a year or so ago maybe you can google it ?

Getting your thyroid optimally medicated will also help your COPD, it helped my Mum, I recall reading about a COPD/thyroid link, but do check it out by googling it yourself, Also check your iron levels too as low iron = low oxygen = breathlessness.

SlasJ profile image
SlasJ

I posted the other day regarding copd review well I have been informed my lung funtion results are normal. I have struggled with the disgnosis of copdcas I am very fit. I have been to hell and back since November I heard excuses yesterday about why my result was showing copd as nurse was new and old equipment and machine was not calibrating well how many more are walking around with a wrong diagnosis and have been in a dark place. However I am feeling a million dollars with result of not being copd. Hopefully I will have my thyroid results tomorrow

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