Hi all, I've been hypothyroid for about 20 years. Still trying to get myself sorted. Been referred to an endocrinologist, seen him twice. Not much help. Have been self medicating with T3 along side my thyroxine. For about a year now.
Was advised by endo to cut the dosage back, which I did reluctantly. Had another blood test. Feel worse, surprise surprise!
Was taking 100 mcg thyroxine 4 days a week and an additional 25mcg on 3 days a week. Was taking 12.5mcg of T3 twice a day.
He asked me to change the T3 to 6.25mcg twice a day. Thyroxine stayed same
So the comparative blood test results are,
Pre the change Free T3 9.6, now 5.2
Pre the change Free T4 16.2 now 17.2
I decided to tweak the dosage to 12.5mcg in the morning with a further 6.25mcg later in the day. Endo doesn't know this but my GP does. She suggested we do another blood test in 3 months to see how that pans out.
What I would really like to know is , is the 9.6 to high ? What levels are considered to be ok? Been warned about heart and skeletal problems, having a bone density test in a couple of weeks.
I quite honestly would rather live a shorter life than live a lesser quality of life.
As I'm sure many of you know, it's hard to get good treatment for hypothyroidism. Bloody frustrating!
Any help you can give me will be gratefully received.