off to the docs now.. have got half way thru sttm and its AMAZING... everything i have been saying to myself all along... tsh and t4 testing alone is a load of hmm hmmmmm, rubbish!
Now all i have to do is climb that huuuuuge thyroid ignorant mountain that seemingly 'most' docs have... i am 'normal' yet screamingly hypo!
here we go ... new doc, new day,,,, place your bets please as to whether i get taken seriously!
You will be told to stop using the internet and ignore everything and STOP READING - "after all I have studied for years to be a doctor" and I know best.
So you can ask him how many clinical symptoms can be due to hypothyroidism (300+) - don't tell him that and he will probably say symptoms don't matter as the 'wonderful' TSH is the perfect way to diagnose/treat. You will then say, so what's your explanation about my situation? Perfect TSH and a myriad of symptoms which theoretically should have disappeared.
However, you might get the rare satisfactory consultation where ideas you've read about can be put into action!
spot on .... oh , and noooh,, its fibromyalgia.. or chronic fatigue syndrome.? she then asked why i thought it was my thyroid? i got up and went to leave... she sat me down n listened, n i got to change my endo n finally get a t3 test, n others... but she said my eye problems were another problem.. not thyroid... erm... so u never heard of TED then? christ almighty i want to screeeeeeeeeeeeeeeeeeeeeam! told her about the sttm book... she said, 'is it american?' n shoved it to the side....she said she was worried my expectations were too high? wtf? i said, well all i expect is to be well again n not go bald! am fuuuuuuuuuuuuming!
Keep calm - impossible I know. Thankfully we don't need them to do any ops as I doubt they know where the thyroid gland is situated (oh - maybe ) but they certainly don't know what its function is.
Tell her you are now a member of Healthunlocked Thyroiduk.org who are NHS choices for information and help re thyroid gland dysfunctions and that you've asked questions and received answers.
It is a Free T3 blood test you need not T3. and there's an explanation of why in this link:
she asked where i was getting my information, so i said from books, from internet , from other peoples experiences and she just tutted... so annoying... so i have had to fight hard to get the t3 test , will it not be as good as the free t3 test? am still learning... also, i was wondering about rt3... i get bogged down at times x
I too will be treading the same path in a few weeks once i've had my new bloods done. I am absolutely dreading it! I will let you know how i get on, but suspect i know the response i will get 👎🏻
Join Thyroiduk.org.uk as a member £20 per annum plus quarterly magazines. We also have a Conference every few years and campaigns going. Details from below:
i will do... are they open minded like on here ? its very difficult to carry on sometimes when you come out the doctors surgery feeling worse than when you went in .. i shall defo join thanx
Thyroid UK are a charity - they run this forum that we are posting on. They are not doctors and they don't treat people. What they do is campaign for patients to get better thyroid treatment.
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