Not sure any more.....: Ok so I know I've been on... - Thyroid UK

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Not sure any more.....

11 Replies

Ok so I know I've been on my new dosage for our 3 days. And don't expect to feel better over night either. I guess I'm just frustrated with the symtoms I'm dealing with. Trying to put my finger on it. Recently I've never been told I have high blood pressure, lately thelse last 2 weeks I have. I had been dealing with anxiety, sleepless nights, and rapid heart rate. But... before all this we think outta wack a month ago I was prescribed 2 antibiotics that I for sure know threw me outta the loop. I believe it gave me the worst side effects on top off what I was dealing with before with my thyroid. It made my systems 10xs worse. Dr who prescribed antibiotics doesn't think so but I'm not the only one who suffered the side effects. Ever since then I feel it missed up my whole nervous system, and being that I have CONGENITAL HYPOTHYROIDISM (No thyroid gland at birth) maybethe meds didn't mix well. So now I'm dealing with heart racing, waking up in the middle of the night sweating from head to toe.. and not being able to sleep. I saw my regular physician about my blood pressure and let him know my new endo switched my dosage after he received my labs and said I was given too much levothyroxin. From 200, we went down to 159, then down to 112 to start fresh and work our way up. My primary Dr gave me a Rx of beta blocker to help with the rapid heart rate. I'm just scared to even try anything at this moment. Tired of just not knowing. I'm scheduled to see a neurologist July 20 and explain to him about tingling and numbness that cones in goes on my face. An MRI of the brain and spine showed nothing wrong. So I'm hoping a nerve test will help. I know hypothyroidism leads to problems like this, and I just hope with the high dosage or even antibiotics didn't put strain on my nervous system . Any ways of being able to test for it, or to try and healthy it naturally.

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Jazzw profile image
Jazzw

Have you ever had a Vitamin B12 test? It's very common for B12 to be low in those with hypothyroidism - and lack of B12 causes all kinds of problems, most notably tingling and numbness.

Clutter profile image
Clutter

Nancycm14,

I can't add to anything I wrote on your previous post about thyroid levels without seeing results and ranges.

Numbness and tingling in the face, particularly around the nose and mouth, and in fingers and toes can be due to low calcium. Numbness and tingling in hands and feet is usually due to low B12.

in reply toClutter

I'm going to call my Dr's office and have them email me my results from my thyroid. I have my labs from my previous visit to ER but my Dr didn't go by those labs as his labs are from a lab that I usually always used. And the numbers were off. He did say if we use different labs for my thyroid then it's gonna be off by a little. The hospital didnt do a full panel I believe just my TSH. I could sent you that. I just called my primary care dr and left msg for him if he could order more labs for and defiecines in B12, Vitamin Dr, Foliate, Ferrari. Do you think that could help in some way?

Clutter profile image
Clutter in reply to

Nancycm14,

TSH on it's own isn't too helpful. Post the results when your doctor sends them.

If B12, vitamin D, folate and ferritin are low optimising levels will improve wellbeing. Ask your PCP to check calcium too.

in reply toClutter

I'm so glad my Dr ordered the labs I asked for. I'll be headed over there later today for labs. I didn't mention the calcium but when I get there I'll ask to throw it in. Also the saliva test was added on to check my cortisol levels but that won't be done til next week as they have to order it. I'm really hoping for some answers. I'll get those lab results for you later today. I know the stress and anxiety I've been under doesn't help with sleep on top of my thyroid side effects. But thank you @ Clutter for your responses. 🙂

in reply toClutter

I didn't make it on time to pick up my labs at my Dr's office,, they apparently were supposed to be open til 5, but I guess there was a miscommunication.. I have the ER labs and I don't know if it's much helpful as they only did the TSH AND T4... my endocrinologist labs were different from these labs that's why he suggests I do all my labs at one place only. My calcium fell in the normal range from looking at the numbers.. 9.8

TSH 1.60

T4 11.1

As soon as I can get my endos labs I'll post up. What do you think about these labs.

Clutter profile image
Clutter in reply to

Nancycm14,

TSH 1.6 is on the high side for someone on Levothyroxine. Most people seem comfortable with TSH 1.0 or lower. Without FT4 range I can't tell whether FT4 11 is good, bad or middling.

in reply toClutter

What do you mean by high side, I'm sorry you would think I've had hypothyroidism my whole life I'd understand it but I can honestly say I've been naive and put all my trust in a Dr who for the last 2 years had me at 200mg. With just changing days out never a dosage change. I'm now at 112mg as my new dr reduced to start from there and 3mts later come back for labs as he says he doesn't wanna go off of 1 month labs figures 3 mts would show more accuracy. Sorry I'm just trying to understand all this.

in reply to

I've out been on my new dose of 112mg for 6days, I know I can't expect to feel better right away. But I'm trying to have a little faith.

Clutter profile image
Clutter in reply to

Nancycm14,

Most people on Levothyroxine will feel better with TSH 1.0 or lower and FT4 in the upper quadrant and FT3 in the upper third of range. Without seeing your FT4 and FT3 levels with the lab ref ranges it isn't possible to say whether or not you were over medicated on 200mcg but as TSH was 1.6 I suspect you were not.

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