Now what? My ill health started with terrible migraines, ear aches, blocked ears, sinus pains in face and head and a bad cough causing me to be too ill to do a thing and crying constantly. I was put on antibiotics and steroids and it would shift only to return weeks later. This went on for ages. I then said to the doctor that it was odd that I kept getting infections and they kept returning he just said it is one of those things. I insisted it was odd and insisted my research told me it might be due to underactive thyroid. He reluctantly did a blood test which confirmed it and I begain taking levo. 25 mg then 50. He said well you are only borderline but I felt better. A year since starting levo I did start to get good weeks where I felt fine - except for swollen ankles/feet I was full of energy, able to think straight and all the rest.
Then a few months ago another infection hit me - head, face etc. Had to be taken to hospital urgently and was there a while. Put on antibiotics and steroids. Could barely move and was wheezing such a lot. Came out of that and a month later it comes back, came out of that and a month later it comes back.
I hate taking antibiotics. But it is all the doctor can give me. And i know all about the gut flora thing and do that properly.
A few days ago it started again! I know that if I tell the doctor how bad I feel she will say well we cant keep giving you antiboitics, they are bad for you etc. I will say but how come I KEEP getting infections? She says the answer is to go to ENT, I cannot see this as it just happens to be my nose etc that is infected, just like it was at the start. My blood test shows my level of levo is fine.I have seen a consultant who agrees no need to fiddle with it. Dont ask me for the figures. If they say they are fine I am sure they are. I now take 75 mg yet a year ago I was only borderline. And yes I have tried takinga bit less and taking 50 mg instead, it makes no difference. And taking less would not bring on infections.