So I'm fine?

[VictoriaBlossom]

So here are the full results, after sending them back off. Everything looks fine from what they have said. But I don't feel fine? ... Is there anything here that could be hindering my health? Anything input would be great!

Thanks

Victoria x

[Hidden]

TSH could be lower, perhaps an increase in meds?

Edit: FT4 is on the low side.

[VictoriaBlossom in reply to Hidden]

Hey,

I'm not currently on medication. I just have all the symptoms of under active thyroid and no answers 😩

[Hidden in reply to VictoriaBlossom]

How's your ferritin, vits D and B12?

[VictoriaBlossom in reply to Hidden]

My last results were

Ferritin was 161.7 (20-150)

B12 560 (<140->725

Vitamin d levels were deficient at 25. But I was put on a high strength vitamin d and wasn't told any thing about my levels after that.

[Hidden in reply to VictoriaBlossom]

Did they not say anything about retesting your vit d? It is a very important vitamin, a pro-hormone in fact.

Edit: it was last tested 3 months ago looking at your history. How much are you taking?

[VictoriaBlossom in reply to Hidden]

Well they retested it and said nothing, so I would have to go back and ask for my blood results to be printed so I can see levels and that.

I was on 20,000iu D3 I think. For 6 weeks although was then told at a later appointment I should have been on them for 10... And was never given the extra amount.

I'm just so over visiting the dr, can never get an appointment anyway!

[Hidden in reply to VictoriaBlossom]

I would ask to be rested unless you're happy paying for a private test, it's around £28 I think.

Where I live there's a 5 week wait for appointments.

[VictoriaBlossom in reply to Hidden]

5 week wait! 😱

[Hidden in reply to VictoriaBlossom]

Yeah 5 weeks. It's probably due to repeat visits by thyroid patients ... if only GPs could get it right first time *sigh*

[VictoriaBlossom in reply to Hidden]

Yeah probably. I actually hate going to the dr now because I know what's going to happen!

[Clutter in reply to VictoriaBlossom]

VictoriaBlossom,

Ask your GP receptionist or practice manager for the vitD result.

[VictoriaBlossom in reply to Clutter]

Yeah I'm going to be getting my results ASAP

Thanks

[catalonia13 in reply to Hidden]

Cinnamon-girl, my Vit D was low last Nov, put on 20,000 per week for a weeks, then again for another 8 but, GP will not test for another year?!

[Hidden in reply to VictoriaBlossom]

Another option is to write to your GP, copy to Practice Manager, stating that they are doing nothing to help you recover your health. List your symptoms along with the severity. I personally found that by putting it in writing they had nowhere to hide.

[VictoriaBlossom in reply to Hidden]

I think I'm going to have to do that. All they have to offer is that I go back to therapy, anti depressants and a diagnosis of fybro. So frustrating. I am looking into ketogenic diet now to lose weight and supplementing myself because nothing seems to be working 😡

[bluebug in reply to VictoriaBlossom]

Until your vitamin D has been tested and confirmed in the optimal range NOT just adequate then you cannot be diagnosed with fibro.

I know some people even with vitamin D levels in their 40s and 50s show symptoms of deficiency particularly fatigue. They were fine once their level was raised over 70.

If your doctors are useless then you are going to have to sort it out yourself.

BTW what was your folate level and the range?

[VictoriaBlossom in reply to bluebug]

I also has a positive ANA test and nothing has been done. I haven't even had a proper follow up as the GP said she can't because she didn't carry out the blood tests. All so very strange.

I will go into the surgery tomorrow and get the results of all my bloods even the ones the rheumatologist carried out. ( that included the positive ANA)

Looks that way as I've been numerous times and I get the response "so what do you think you have" .... Arghhhhhh

Thanks for your help o appreciate it so much

[bluebug in reply to VictoriaBlossom]

The GP can do the tests again.

I suspect she doesn't want to spend the practice budget on it.

[VictoriaBlossom]

Yeah I will be getting them. I had a hormone profile done and they were abnormal too! And nothing was done. So shit!

No I haven't, what can they do?

[bluebug]

Just a word of warning always stress your other symptoms of pain, fatigue etc rather than depression and brain fog.

Doctors know if they class you as depressed they can ignore your other symptoms so play down the depression and brain fog.

In fact I would turn around to them and say to them if they suggest your problem is due to mental illness, "If you were in constant pain etc wouldn't you be depressed?"

[VictoriaBlossom in reply to bluebug]

I have done over and over, I've actually been pretty optimistic about trying to find an answer to all this as a year ago I wasn't feeling half as bad as I am now, and I was 3 and a half stone lighter ! The weight just won't shift!

And that's the whole point. If someone had to feel this crap every day wouldn't they feel like doing nothing, be stressed and pissed off because a medical professional can't provide simple tests or take abnormal results seriously!

Sometimes I wonder how they all actually went to Med school because they have 0 bed side manner.

[bluebug in reply to VictoriaBlossom]

They lose their bed side manner - those who have it to start with - when they have to deal with budgets.

It still doesn't excuse some of their disgusting behaviour towards patients.

Anyway get your vitamin D results post them.

[VictoriaBlossom in reply to bluebug]

Your not wrong there! I will do thank you all so much for your replies... Means a lot

[Hidden]

Nah the over-populated, over-opinionated Sarf!!

[Hidden]

lol at precious prima donnas. I strongly suspect there's derogatory comments in my medical records, would certainly explain their disinterest.

[VictoriaBlossom]

No it was a weekly dose. And to be honest I was told it would help me feel better.

My bones hurt at that point, and I still don't feel too hot now!

[VictoriaBlossom]

It was tablet form

[VictoriaBlossom]

No haha. South

[VictoriaBlossom]

God, it actually makes me sick that they can actually refuse you like that.

Funny story because the tiredness all started when I was over worked at work and it was making me ill... Turns out that they thought I was depressed so I did go into therapy was put on anti depressants. Now I look back the anti depressants really didn't make any difference. I felt the same on them as I did off them.

I was also deemed a person with health anxiety as I used to worry about little things. But that feeling has long gone. I'm not scared of being ill. I actually feel unwell! And people have started to notice so I know it's not in my head! And I knew as soon as they thought I was depressed they would just link it to that and not take me seriously. It's an actual joke.

[VictoriaBlossom]

Hi I do have it I will have a look for it and send it over to you!

[Glynisrose]

Are you a bunch of numbers or are you a person?

[VictoriaBlossom in reply to Glynisrose]

Excuse me?

[bluebug in reply to Glynisrose]

NHS doctors will not listen without appropriate test results.

However some fearing they have to treat people for long term conditions refuse to do the tests, and when challenged argue either there wasn't a clinical need or there was insufficient funding.

In this case we are trying to get the thread starters vitamin D results as low and insufficient levels of vitamin D make people feel much worse regardless of what medication they may have.

[Glynisrose in reply to bluebug]

They need to be forced or change your doctor. Its all about how you feel not numbers.

[VictoriaBlossom in reply to Glynisrose]

I tried to change dr, the new surgery wouldn't take me as a second opinion! And the rest are out of my catchment area.

There's only so much you can say to Drs over and over and they don't do anything. And so many people are in the same position. But apparently to them it is all about the numbers so what more can I do?