Hi, my neck is always swollen and just doesn't seem to ever go down. the swelling is quite far up my neck also, just underneath my jawbone. I was just reading up on congenital hypothyroidism and this can be a sign, the thyroid gland stays high up in the neck. My mother and aunties are all hypo, also we have distant relatives in Australia and my mum visited them last year, the females their are also hypo. I am wondering if anyone else has this kind of swelling high up on the neck? how the heck would you get a doctor to look into it further? I know that now they do a heel prick test on all new borns to test for this but I don't think they did in the 70s. I am concerned as I have 3 children and one girl and she shows some symptoms of being hyper, however nothing showed up on her heel prick test. However I am not too sure I trust the nhs to tell you the truth about the results anyhow.