READ THIS! CCG's are stopping docs and endos's prescribing T3 by using bits from this that suit them. T3 is a possible treatment etc AGH!!!

As I read it there is scope for consultants and specialists to prescribe T3 AND recommendation

HOW THE HELL can they get long term

Bulletin 121 Updated - Liothyronine (DROP-List)

Created: Tuesday, 16 February 2016 12:20

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The RCP has replaced their  statement on the diagnosis and management of primary hypothyroidism with  the 2015 ‘Management of primary hypothyroidism: statement by the British Thyroid Association Executive Committee’. We have therefore made some changes to the bulletin so that it is in line with the BTA recommendations.

The British Thyroid Foundation has also produced a set of Questions and Answers relating to the statement. This is a useful set of questions and could help prescribers explain to patients why the L-T3 or L-T4/L-T3 combination is not recommended, we have added a link to in the bulletin.


9 Replies

  • Yes, others spotted it last week.

    See for more responses.

  • I don't think this is based on any research whatsoever, it is a fact that many patients who don't do well on levothyroxine can improve with the addition of T3 or other hormones but not levothyroxine.

     There's absolutely no doubt about that. So these 'professionals' where do they source their information from? Certainly not the people who have the most need for this essential hormone.

    We are not machines but flesh and blood and that flesh only functions when liothyronine is at is optimum.

    I am not medically qualified, maybe not even highly educated but I can distinguish sense from nonsense especially if the decision would rebound on my health by those who are supposed to be 'educated' and 'knowledgeable'. They would only be knowledgeable if they were hypothyroid and not improving on levothyroxine or even worse in some cases.

  • Thank you for the link to that post ellismay.  🌺  Liothyronine keeps me alive.  Fact!  'M'

  • But the Feb edition basically says the same, bite supported by BTA!!!

  • The BTA document is deeply unsatisfactory and will be used to support non prescribing or withdrawal of T3 I'm sure.  Very disappointed. My battles over this continue as I can't get a CCG response. 

  •  2

    please read this thoroughly especially last paragraph and the bit that they never gave guidance to cease treatment. My specialist is now saying that individual funding application is way to go and i am pursing this with him and GP


  • >>  it is a fact that many patients who don't do well on levothyroxine can improve with the addition of T3 <<

    There are some 20 research reports on this:

    Research settings have been disputed, but anyway patients do get well.

  • british-thyroid-association...

    Read thoroughly especially point 12 at end. CONSULATNTS CAN DO A TRIAL OF T3/T4


    Guidance for Clinicians Policies Document


    Applications cannot be considered from patients personally and all applications must be signed by an NHS GP or Consultant.

    1. Procedures/treatments which are indicated as CBA (Criteria Based Access) will only be funded where the published criteria is met and detailed within the patient’s

    medical records. Referrals to secondary care should clearly demonstrated how the

    published criteria is fulfilled.

    2. Procedures/treatments which are indicated as PA (Prior Approval) will require

    completion of the generic IFRP application form and should clearly indicate how the

    published criteria is fulfilled.

    3. Procedures/treatments which are indicated as IF (Individual Funding) will require completion of the generic IFRP application form.

    4. In order for funding to be authorised for IF applications put forward there must be

    some unusual or unique clinical factor about the patient that suggests that they are

    exceptional as defined below:

     Significantly different to the general population of patients with the condition in question

     Likely to gain significantly more benefit from the intervention than might be expected from the average patient with the condition

    5. Provided these patients receive the full support of their general practitioner, or NHS

    consultant, in pursuing a funding request an application may be made to the

    Individual Funding Request Panel for consideration.

    6. For some procedures, criteria relating to BMI and smoking status have been

    included. These criteria have been agreed following discussions with plastic

    surgeons and take into account their impact on clinical outcomes including wound


    7. It is expected that clinicians will have ensured that the patient, on behalf of who they

    are forwarding the application for, is appropriately informed about the existing

    policies prior to an application to the IFRP. This will reassure the panel that the

    patient has a reasonable expectation of the outcome of the application and its context.

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