Coming off Levo

[digby]

My doctor says my antibodies test is negative and would I like to come off Levothyroxine. I have been on it for four years 75mcg. I am a little worried it is that easy.

[humanbean]

You would only have tolerated 75mcg of levo per day for four years if you were hypothyroid. Of course you must stay on it! I'm gobsmacked your doctor could think otherwise.

[digby in reply to humanbean]

Hi Humanbean, Thank you for your reply I am seeing Doctor on 1st April, so will go armed with lots of info.

[Clutter]

Digby, Patients can be hypothyroid without having autoimmune thyroid antibodies. What was your TSH when you were first diagnosed and what is now on 75mcg? Thyroid function tends to decrease with time not improve. I don't think your GP is right on this and you may want to get a second opinion before deciding.

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I am not a medical professional and this information is not intended to be a substitute for medical guidance from your own doctor. Please check with your personal physician before applying any of these suggestions.

[digby in reply to Clutter]

Thank you very much for your reply Clutter. May I send you an email with attachment. How can I send you a private message. Have just changed to Windows 10 and haven't got a clue now !!.

[Clutter in reply to digby]

Digby, Click on my username and select Send Message top r/h of my profile page. You'll have to copy and paste the information in the email and attachment into the private message.

[CarolineC57]

Do you still have hypo symptoms? If so, then you need it - in fact you might not be on enough. If you don't then I guess you could try lowering the dose to see what happens? It sounds like your doctor is going by blood test alone though, and not considering symptoms at all.

[digby in reply to CarolineC57]

Thank you very much for your reply. May I send you an email with attachments. How can I send you a private message. Have changed to windows 10 !!

[CarolineC57 in reply to digby]

Hi Digby - I'm not really an expert here - I'm just learning about all this from the good people on this forum (like Clutter above). It might be best to simply post your results in a new thread here. Then, people in the know will be able to advise you.

I don't think I'd be able to help you much beyond my comment above. I simply know from here (and from my own experience) that doctors tend to go by blood tests alone (generally TSH only) and ignore symptoms. I had to go to a private doc to get diagnosed myself. If you're still symptomatic then you probably need thyroid hormones - but I'm no good at interpreting results I'm afraid.

[digby in reply to CarolineC57]

Hi CarolineC57,

Thank you again for all your help. I will get my results out soon.

I see my doctor on April 1st. Watch this space.