coming off levo due to feeling ill.?: Querry... - Thyroid UK

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coming off levo due to feeling ill.?

2leapittoo profile image
10 Replies

Querry levoyhyroxine. I dont feel well. Im having migrains and awful tummy upsets as soon as I rose 25mgvto 50 alternate days as told by gp. They wont see me until Sept so Ive come off it altogether. Will I be ill worse than these symltoms on it. I was 5 ts level in Feb, My head is clearer now, no migrains no tummy upset. Is it dangerous no meds. Could my body recover naturalky. I had large goitre part thyrectomy 1 year ago. Feel vety isolated not seeing medics. Its this over 70 nhs talj left behind due to Covud 19 Im thinking. Cant goto gp yet.

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10 Replies
SeasideSusie profile image
SeasideSusieRemembering

2leapittoo

What brand are you taking?

Sometimes we can react to fillers in the tablets and it might be worth trying a different brand.

Peanut31 profile image
Peanut31

Hi

You may feel fantastic for a few days, full of energy but then it will hit you like a ton of bricks and you will feel very poorly again.

I speak from experience as I stopped my Levothyroxine after not much success, however I had an alternative to Levothyroxine.

I also felt worse on a certain make of Levothyroxine which was Teva, maybe try a different make.

Why are you taking 50mcg on alternate days? Why hasn’t your GP giving you the increase to 50mcg every day?

Can you afford to have your own blood tests privately to see what your results are?

Best wishes

Peanut31

2leapittoo profile image
2leapittoo in reply toPeanut31

Thank you for that. Gp said 25 one day 50 levo next. again this am I wasnt good. I felt dizzy on getting up and a headache for 2 hours. Im taking early 6am with water as it says dont eat. Wonder if its my timing. Im not feeling good either due to my breathing Ì had a goitre removed which left me with a C bend in windlpipe it caused damage because I didnt have it removed soon enough.

Peanut31 profile image
Peanut31 in reply to2leapittoo

Your not on enough thyroid medication, have you got enough to take 50mcg everyday or ask your GP for extra?

Best wishes

Peanut31

JAmanda profile image
JAmanda

Are you sure you’re not just under medicated?

2leapittoo profile image
2leapittoo in reply toJAmanda

is under medicated likely to cause me feeling sick, migrain and tummy upset? Ive demanded a blood test for result got one next Thurs. thank goodness as Im not feeling ok. thank you, Chrisx

Marz profile image
Marz

Am wondering if you are able to read through the Replies posted to your question of two months ago ? Did you manage the vitamin and mineral testing ? Lots of good advice which may help you tolerate Levo more easily. Have a read through and shout if you need more help.

From reading here I am not sure stopping is a good idea ... 🌻

2leapittoo profile image
2leapittoo in reply toMarz

Thanks for yours Im getting bloods done Thurs next, its these virus issues nobody can get tested for ages. terrible saga.

Peachandcream profile image
Peachandcream

Certainly think the brand of levolthyroxine makes a lot of difference.

For example, I cannot tolerate Teva, makes me feel sick.

The brand Actavis. Absolutely fine. But unfortunately, not always available. Why? Who knows.

It can be very frustrating, but it's worth keeping the chemist informed of any difficulties. The chemists are more knowledgeable about tablet compounds than the Doctors. Best of luck.

2leapittoo profile image
2leapittoo in reply toPeachandcream

thank hou I agree ghe gps dont seem to help with meds evo.

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