I'm 27 years old and was diagnosed with hypo when I was 22. I went straight on to thyroxine at 25mg and over the last 5 years (still with all the same symptoms) have gone up to 75mg at the most with bloods always 'suggesting' I go back down. I seem to be stuck on 50mg now but last year managed to battle to get a referral to see an endocrinologist and had some hope that I may be treated with some understanding and knowledge of this complicating condition...
So, my first visit was as you can imagine, disappointing. The endocrinologist appeared fixated on the fact I might not have hypo as I'm experiencing the same symptoms and my bloods are 'fine'. I said that thyroid uk and many others will say that the basic blood tests are not representative but of course he knew best. (Although appears to be a specialist in diabetes over thyroid conditions). He requested I have just TSH and T4 tested (I assumed I would have a full spread) and then I was out the door, feeling rather upset and dismissed. That was 3 months ago and I'm due to go back next week.
I haven't picked up my latest bloods to tell you but just at a loss as to where I can take this. I don't want to see him next week but not sure what i can do. My partner is coming with me but I am unsure what to equip myself with to make progress. Does that sound like a normal first appointment with the NHS or should I have had more bloods? At the very least I thought I wouldn't have to explain, as I did with primary care, that not everyone improves on thyroxine. I've had a tired and mentally exhausting few months and feel like this appointment will be pointless after taking years to get in front of an Endo.
Sorry for the ramble, any help would be much appreciated.