I thought I'd update my previous posts. I saw my gp two and a half weeks ago to ask him to provide me with a prescription for American 10mg liothyronine capsules.
Since the formula of the mixer has changed with UK lio tablets, I can't tolerate them. They make me extremely ill. I ache all over, increased appetite, very tired etc etc. But the worst part is my eyes become really dry and really sore. I've tried three different kinds of drops and they really sting and hurt when I put them in my eyes. My vision quickly deteriorates and is very blurred.
My gp initially said he would look into how to write a named patient prescription for me and would get back to me in, " a day or two." A week later when I finally managed to speak to him again. He told me he would not issue me a prescription. He wants me to see a consultant at our local hospital, and for him to monitor my transition to the new tablets. I do not understand this at all. It's changing from 1 x 20 mg liothyronine tablet per day to 2 x 10mg liothyronine capsules a day!!! Where's the change? Doctor says there could be different absorption rates. He told me that no other doctor from the surgery would issue me a prescription either. He also stated that the practice manager had instructed him not to issue me a prescription. I can not move to another surgery as I live in a village and no other surgeries will accept us.
He said he would get me a very urgent appointment immediately. Another week went by and I contacted the hospital to find out about appointment. Doctor's letter had got lost. New letter sent. I was then tri-aged as non- urgent. Waiting list is 4 to 6 months but in reality it will be six months.
I got back in touch with doctor. He said he would contact the hospital and get my status changed to very urgent. I would have an appointment this week.
I got a telephone call on tuesday morning from the surgery, checking that I was available for an appointment any time this week. I thought it was the doctor's secretary. She told me she had just phoned the hospital to try and get me an urgent appointment for this week. She was told because my status is non-urgent she could not book me an appointment. She told me my doctor would phone hospital on Wednesday morning and get my status changed and my appointment this week. He'd call me when it's booked. ( Doctor does not work Tuesday's )
I heard nothing yesterday, so phoned doctor lunchtime. I was told there is no record of anyone telephoning me on Tuesday so I could not have had a call from anyone at the surgery. I was told that the doctor has written me quite a long letter, which is awaiting his signature. When pushed for it's content,
I was told that doctor could not get me an appointment at present - consultant will be happy to see me sometime in the future though. Urgent patients are seen in 4 - 6 weeks most likely 6 weeks. I'm still waiting on letter. Again when pushed, I was told I could collect it rather than wait for post.
I then decided I would pay to see the consultant privately. It's £200. I rang the same consultant that my doctor was trying to get me an urgent appointment with on the NHS. The secretary said she had to speak to consultant before I could book appointment. She did call me back. She said I would have to send her a referral letter, then the consultant would decide IF he would see me. When pushed for a date, she told me, " we are not an emergency service, you can't come to us just to be seen quickly."
I am not often speechless, I was this time. I only contacted this consultant because he already knew my circumstance as my gp had spoken to him.
I run out of my current batch of liothyronine on Wednesday. I collect my new prescription tomorrow. It will almost certainly be the same batch as made me so ill last month. There is a very small chance it will be a different batch, but even if it is, it will probably have been made since the formula changed. It will make me very ill again. My doctor says I just have to decide whether I am most ill by taking the tablets I'm allergic to or by stopping the tablets altogether!!!!
I saw a consultant last August, who told me that I had symptoms of both Hypo and Hyper thyroidism and that it would be extremely dangerous for me to reduce my medication.
What can I do? I'm so tired - I haven't slept properly for weeks and the stress is unbearable. I can no longer think straight.
I'm sorry this is so long - but it helps to be able to vent.