MRI results.....was the pituitary seen? Is it acromegaly?

[cocobella]

Hi everyone,

I haven't posted on here for a while. I lost my job due to my health and am pretty low. It's a hard pill to swallow at 29! My symptoms still same, severe joint and bone pain, swelling of hands and feet, fatigue, neuralgia and pins and needles, sweating, shaking episodes, psychiatric symptoms, arthritis and nodules now in hands but its non specific and iv been tested for inflammatory arthritis. PTH and IGF1 are elevated. Tested for diabetes and was negative.

Anyway, I got a copy of my brain mri results f June this year and I don't understand it. Would be good to know if any of you can make sense of it.

The pituitary hasn't been mentioned and im wondering if it has even been imaged in this case? The only reason I wonder is that it has transpired I have high IGF1 hormone , have already had a total thyroidectomy for a compressive nodular goiter and also had parathyroidectomy too for hyperplasia and high PTH. That was two years ago. Now I still have high pth and high igf1 which points to acromegaly or a problem with the pituitary. I am having another blood test in january to confirm this. But I wondered if my mri this year which was requested by neurology which was for numbness and tingling of face and arms and legs (which I know this can be endocrine related). When you look at the symptoms of acromegaly I have 70% of them. However my hands and feet are still small.

Ok here goes with mri......

MRI HEAD WITH CONTRAST

Straightening of cervic lordotic curvature is noted. Some slight disc bulging in neck.

Parts I don't understand....T2 axial, T1 saggital and T2 medic axial. Subtle signal alteration frontal sub cortical white matter. Vascular loop next to right trigemnal nerve.

Since pituitary wasn't mentioned does this mean it was ok? It was noted I have sinus mucosal thickening and a nasal polyp.

Any help would be greatly appreciated.

Thanks in advance

Coco x

[Clutter]

Cocobella, I doubt members will be able to interpret your MRI. I think you'll need to discuss it with your neurologist.

[Bagpuss]

Hi

I have had head MRI s before and it doesn't look at the pituitary I don't think. Pituitary was not commented on.

I have had a separate MRI for pituitary and I think it is so small that they have to do a study just in that so it sounds to me like you should be asking for a referral for further investigations.

[Rebecca01]

Hello I had a c.t brain scan which commented on my pituitary gland as i had a lot of the symptoms of a tumour their, plus two Mir scans on my brain . All three scans looked at all of my brain . Ring your consultant and ask them the question I have rang mine twice about my results and my GP had a copy so I spoke to them about it . All I can say is ask them good luck I hope you get your answer .

[SimonA87]

Hi cocobella,

Did you ever find the cause of your high IGF1?

Thanks