What next!

Hi , as well as the thyroid troubles , and fybro , and the leiden v clotting I've just been diagnosed with left ventricular hear failure .

Just had a blood test , vit d deficient , and borderline diabetic .

Should have been on heart meds since 12 October , doctors failed to contact me ,after letter from cardio. Just started beta blockers as stop gap till appointment with consultant .

Heads in a spin ,

What's best vit d to get ? Anyone out there with similar problem.

No confidence in doctor at all.

10 Replies

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  • I am very sorry you've been given news which would have shocked you. It is a disgrace you were not contacted before and it is negligent.

    I hope you are seen quickly by the cardiologist. Also did your recent blood test include thyroid hormones? If so, get a print-out of the results with the ranges. I wonder if you might have been underdosed.

    Are you hyperthyroid or hypothyroid?

  • Hi , thanks for replying

    I'm hypothyroid, at moment on 75 thyroxine a day

    Also medicated with

    Gabbapentin

    Warfarin

    Atorvastatin

    Dusulopin

    Tramadol

    I'm completely confused, with all the meds , they just pile one on top of the other , when I ask instead of or as well as they say as well as , I've had different pain killers added in too .

    I rang cardio today and should be on ACE inhibitor and beta blockers .

    Letter went 12 October to docs .

    I'm going in tomorrow to see a different one , but its been a shambles .

    Not due cardiology again for 3 months , they seem to have passed my meds to doc , but doc told me I was to be treated by cardiology direct .

    I've asked cardio for copy of letter to docs but even the receptionist said she could see that I was to be placed on medication , God knows what planet the doctor was on .

    I know its heart failure , left side damaged and not pumping properly .

    It's stressing me trying to sort what should have been a simple thing .

    Doctors seem to have just filed the letter and not contacted me to tell me what's happening and prescribe me meds .

    What a mess!

  • sorry to hear about the late communication , it must have been a bit of a shock .

    Makes you wonder just who you can trust doesn't it.!

    Like you I am today looking for information and sources of good quality Vitamin D3

    My Dr recommended 800iu daily which is preposterous.! At that daily intake I'd never recover a reasonable level.

    I have seen recommendations of 1000iu to as high as 5000iu a day until Vitamin D3 levels recover and then reducing to 800-1000iu daily during periods where you cannot get 20 minutes sun on your skin daily. I'm sure there are many on here that can give us both much better information.

    Have you also got Hypertension ? ( high blood pressure ).

    I've been reading up about the condition this past few days and found several online sources that said High blood pressure can be caused by being deficient in Vit D3 ,Magnesium and B Group Vits, in addition to other factors of course.

    Apparently Hypothyroidism can in some people eventually lead to a slow relaxation rate in the heart muscle resulting in the heart being unable to fill properly . This condition can also contribute to high blood pressure and other problems.

    Like you my Vit D3 is a mere 2.0 . I'm also deficient in Magnesium and Vits B2 B6 B12 Folic acid etc so I am about to order up some vitamins .

    Might be worth checking your Vitamin and mineral levels ,

    I am considering Wellbeing , Natures Best , Healthspan and others but I cannot find a reputable source for 2000iu tabs in the UK

  • Hi , thanks for the reply .

    I was told a while ago if you bathe in Epsom salts you can absorb the magnesium through the skin.

    You can get bags of salts online very cheap .

    I have hypothyroid, and have had a couple of blood clots in the past , one pulmonary embolism , clot in calf , and last one in illiac vein in groin, now permanently on warfarin .

    But heart results knocked me for six .

    Docs don't seem too bothered about me seeing an endio .

    Sometimes I think they don't even bother to read the notes .

    I rang cardiology to ask them to send me copies of any letters to the docs , turns out I should be on beta blockers and ACE inhibitor , but as far as I know the blood pressure has always been OK.

    Going in to see a different doctor tomorrow , with loads of questions to ask .

    I'm already on a chemical cosh with all the stuff , and I'm sure I need a full review of meds .

    It's a nightmare .

    Thyroxine

    Gabbapentin

    Tramadol

    Atorvastatin

    Dusulopin

    Warfarin

    And now the two heart meds plus a spray for under tongue , I get that many aches n pains not sure which is angina and which not , to say I'm totally confused is a complete understatement.

  • Lonewarrior, D3 softgel capsules may be better absorbed than tablets, and taking vitD with the fattiest meal of the day will aid absorption. There are also drops and sprays available. How low is your vitD?

    _______________________________________________________________________________

    I am not a medical professional and this information is not intended to be a substitute for medical guidance from your own doctor. Please check with your personal physician before applying any of these suggestions.

  • Hi

    Thanks for the reply , I think the level was 20 , not sure as I had loads of things to take in in one go .

    The doctor didn't prescribe anything but told me to get Vitamin d over the counter .

    I rang cardiology and the doctor was informed on the letter to him that I should be on beta blockers and ACE inhibitor he failed to mention either .

    Cardiology are sendi g me copies of the letters to doctors ,I should have been in these meds from 12 th of october so I'm 2 months late .

    I'm going in to see another doctor tomorrow to try to get it sorted.

    I'm borderline anemic , and blood sugar levels are high too.

    Everything seems to be happening at once .

    Also have a sprey for under tongue .

    Thyroid levels were OK , on 75 mg at moment and he says its being absorbed well .

    Not seen an endio or anything like that , but it all seems a mess at moment .

  • Lonewarrior, I'm surprised your GP didn't prescribe vitD if it was as low as 20 which is deficient. Perhaps you could check the level tomorrow and if the GP doesn't prescribe, let me know what the level is and I'll recommend a dose. If your iron isn't low enough for NHS to prescribe iron you can buy it OTC and supplement to improve levels.

    _______________________________________________________________________________

    I am not a medical professional and this information is not intended to be a substitute for medical guidance from your own doctor. Please check with your personal physician before applying any of these suggestions.

  • Hi ,

    Thanks clutter , I'll pass on the info .

    It's a different doctor tomorrow , but I will ask for full details .

    What a mess .

  • Ask for a Full Thyroid Function Test. TSH, T4, T3, Free T4 and Free T3. It's the very least they can do. Your dose of 75mcg could be too low for you causing other health issues.

    Get the earliest possible appointment, fast (you can drink water) and leave about 24 hours between your dose of levo and the blood test and take levo afterwards. Get a print-out of the ranges and post on a new question for comments. I am assuming your TSH is above 1 when it should be 1 or lower for us usually to feel well.

    I am assuming you've been given Atorvastatin for higher cholesterol - a clinical symptom of hypo which should reduce on an optimum dose of levothyroxine.

    This is an excerpt from a previous post:-

    "Simply stated, without inflammation being present in the body, there is no way that cholesterol would accumulate in the wall of the blood vessel and cause heart disease and strokes. Without inflammation, cholesterol would move freely throughout the body as nature intended. It is inflammation that causes cholesterol to become trapped" -- Dr. Dwight Lundell

    healthunlocked.com/thyroidu...

  • This is a link re Fibromyalgia:

    web.archive.org/web/2010103...

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