Hi all
I've now been self medicating with NDT for almost a year, best time of my life for the last four. I'm due for bloods, my GP left, she was more understanding than most.
My TSH is so low, it's not on the page, is there anyone else on NDZt that finds this ? I'm not unwell in anyway, quite the opposite, but I know they will go I to a spin when they see my results, ( although they won't support me, because I won't go back on LEVO, I felt terrible for three years )
Many thanks in advance.
Wow, thanks for that advice, I'll do just that, your a star, I know it's like this for the majority, I've tried to educate the Dr but they just won't listen, it makes me so cross they think they know how we feel better than we do. My GP bless her, had to admit when I went bouncing into her surgery that Im a changed person for the better, she admitted that more and more of her thyroid patients were asking for NDT.
Can't thank you enough, they seem fixated with getting the TSH on drugs, to the same level as a normal persons, it's not going to work is it ? Because it's broken. Lol.
I have provided my GP surgery with a copy of the TUK Open letter. Can't do any harm I reckon.....
thyroiduk.org.uk/tuk/About_...
Ha ha, it's just popped out of the printer, I too shall be supplying them with a copy of it.
Many thanks x
-Anyone who has had thyroid cancer take suppressive doses of thyroid hormones and they don't come to any ill-harm.
The fact that your are well on NDT I definitely wouldn't adjust anything according to the TSH. The TSH is not the best way to judge and they believe heart etc will be affected (so why not cancer patients?) This is a good article by a Trustee to TUK.
thyroiduk.org.uk/tuk/thyroi...
A couple of excerpts from link elow:-
I have just one concern, and that’s my low TSH, and my patients’ low TSH levels, on the Armour. Should I be concerned about the low TSH levels?
Dr. Lowe: For years, I’ve received emails from physicians such as you, and to my satisfaction, the number is increasing. As I say to most of the physicians, I sincerely regret that you suffered needlessly. Many millions of other people still suffer for the same reason—being on T4-replacement and expecting it to work well.
and
I discuss suppression of the TSH in many parts of the book. However, to gain a thorough understanding of how the endocrinology specialty has misled the medical profession about TSH-suppressive doses of thyroid hormone, I refer you to Chapter 4.4, pages 859-898. The chapter’s title is "Adverse Effects of Excessive and Inadequate Thyroid Hormone." You’ll find that in that chapter—as in every chapter of the book—I use scientific evidence and logical discourse to show the truth of the matter. This approach, of course, differs distinctly from the endocrinology specialty’s scientifically-groundless, commercially-driven ex cathedra pronouncements about TSH suppression.
Our treatment team uses the TSH level only initially to help clarify a patient’s thyroid status. But during treatment, we completely ignore the level. The reason is that the TSH level is totally irrelevant to normalizing the patient’s whole body metabolism and relieving his or her suffering. The only clinical value of the TSH level is to see the effect of a particular dose of thyroid hormone on the pituitary gland’s "thyrotroph" (TSH-secreting) cells.
123Happy, don't leave more than 24 hours between last dose and blood draw or you'll skew FT3 result. Leaving 48 hours won't be long enough for TSH to rise. TSH isn't important but FT3 should be kept within range. Your GP may suggest you reduce dose if TSH is suppressed but as you are self medicating you can't be forced to do so.
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I am not a medical professional and this information is not intended to be a substitute for medical guidance from your own doctor. Please check with your personal physician before applying any of these suggestions.
Hi all
I'm so very grateful for your help, they really frighten me sometimes, I wouldn't mind if they were even anywhere near accurate with the info. I shall read up on TSH so I'm better informed if I have to yet again argue my case. My Ft3 is in range, I've checked, last bloods anyways. X
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