help with results please

[mandy72]

plasma cortisol 17mnol/l (138 - 690) this was after taking dexamethasone

24 hour urine 86nmol/d ( 0 - 270)

i had stopped taking holy basil for at least 2 weeks before tests

[galathea]

Oh blimey, what are the doctors saying to you?

G

[mandy72 in reply to galathea]

the idot dr who called and gave me results the other day said urine was fine blood was low but im to wait until i see endo in 3 months time to discuss

i dont want to wait that long

[galathea in reply to mandy72]

No i can understand that.... Low cortisone levels make you feel dreadful... I would call the endo's secretary and explain you are very stressed by the low results, say you would like to see him as a matter of urgency and will take any cancellations.....

Have you got any symptoms like low blood pressure, fast heart rate?

Xx. G

[mandy72 in reply to galathea]

ive been feeling awful for moths

did a saliva test about 4 months ago and they all came back high so was treating with 400mg holy basil 4 times a day

my heart rate aas allways been all over the place anything from 50 - 100

blood pressure varies

but i have zero energy

lots of weight gain and my eating habits of not changed but lack of energy means im sat all day and if i do anything my heart races and i cant breath

[Ansteynomad]

The result of the dexamethasone test shows you do not have Cushings, because your cortisol levels responded and dropped, but I bet you felt a bit wobbly for a couple of days.

However, if that's a urine cortisol result, then it's very low, so there might still be issues, just not Cushings.

[mandy72 in reply to Ansteynomad]

yes 24 hour urine

my dr (well one that hates me) told me it looked fine

[Ansteynomad in reply to mandy72]

Well he's the doctor. I'm a historian. I only know about the dexamethasone test because I had one. Not sure why. I had no signs or symptoms of Cushings.

I no longer believe anyone who says any test result is 'fine'.

When do you see the endo again?

[mandy72 in reply to Ansteynomad]

i see endo in january sometime

she did the tests i think to cover her back as i showed her my saliva results which were all high

i reported my last endo twice

[mandy72 in reply to Ansteynomad]

i actually felt great the next day

[Ansteynomad]

I've been following your story and have always thought your problems were adrenal in origin. Could you travel to see someone who knew what they were talking about?

[mandy72 in reply to Ansteynomad]

my dr says im a strange case lol

its hard to travel as hubby has just started his own business but if push comes to shove then he will make time for me to see someone who knows what they are talking about