I thought I would magic any chronic fatigue awa... - Thyroid UK

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I thought I would magic any chronic fatigue away my Hypo Thyroid condition can be solved by taking part in a triathlon

MaryF profile image
23 Replies

I thought today I would think positively and dream up some vitamin B12 injections and also imagine a life time supply of natural desiccated thyroid medication arriving. I am also hoping to employ somebody to wave a wand over my entire life and pronounce all my autoimmune diseases a mere figment of my imagination. Unfortunately I don't have much time to sit around doing these positivity exercises as I am in training for the next Olympics and also need to visit the GP as my face has become set in position with a beaming smile.

telegraph.co.uk/news/health...

MaryF

ps youtube.com/watch?v=lmh79AC...

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MaryF
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23 Replies
shaws profile image
shawsAdministrator

Thanks Mary,

We will all join you and there'll be no need for doctors. What on earth were we believing - that's we'd have life-time conditions - not at all. ;) and we will join you in your endeavors and never, ever, need another doctor's appointment. Hallelujah!

MaryF profile image
MaryF in reply to shaws

Yes I thought I would do several laps of the town, and then drop in to the surgery for a consultation about my imaginary metabolic disease, oops, I nearly forgot, I may be on the naughty step for testing my T3 and continuing to take natural desiccated thryoid which has enhance my running skills. MaryF

MaryF profile image
MaryF in reply to shaws

Naturally I will behave as in the above video! MaryF

bantam12 profile image
bantam12

It's an interesting article and does make a lot of sense, apart from execise giving a sense of well being anything that distracts the mind is beneficial.

MaryF profile image
MaryF in reply to bantam12

Yes I do exercise every single day unless my joints are swollen, I never miss a day. MaryF

Fruitandnutcase profile image
Fruitandnutcase

Ah, Wonder Woman - I knew you reminded me of someone Mary 😉

I read what that guy said, I'm not convinced though, I can see what he is saying but he reminds me very much of that scary guy who says that hypo patients really have a 'somataform disorder'. I'm a positive person but positive thinking can only do so much. As a child my mother practised positive thinking - well along the lines of 'it's your imagination' whenever we were ill, the end result is that as an adult I put up with hyper symptoms and was actually quite ill for a very long time before I totally crumpled and was found to have Graves Disease and not an overactive imagination.

So, I think if you feel ill then you probably are and if doctors can't figure out what is wrong and what to do about it, it doesn't make you any less ill and yes, I kept going to the gym and Pilates even when my Graves was at its worst, I reduced the effort I was putting in but I kept going a) for the company and b) to prove that it wasn't going to beat me.

MaryF profile image
MaryF in reply to Fruitandnutcase

I think I know who you mean, now let me see, Professor Tweetie Pie, errr Twitman, er um Weetabix? Never mind I must have erased his stupidity from my imagined brain fog. MaryF

Fruitandnutcase profile image
Fruitandnutcase in reply to MaryF

That's the one Professor Tweetabix 😉

MaryF profile image
MaryF in reply to Fruitandnutcase

Hmm sorry I can't reply at any length, I need to work on deeply somatizing my ailments and need to concentrate, unfortunately a heavy dose of Scotch mist has just descended. MaryF

Marz profile image
Marz

Hope you still have the outfit Mary - especially those lovely red boots :-)

:-) x

MaryF profile image
MaryF in reply to Marz

Well today it is wet and frightful here in East Anglia, so I will be flapping about in front of the television on my exercise machines, to girls the size of twiglets writhing in agony, oops I mean singing, in a attempt for me to keep fit... the worse the music the harder I work out for some reason. MaryF

Marz profile image
Marz in reply to MaryF

...so glad singing keeps you fit :-) I did see the comma - only having fun - in light of our imaginary fatigue !

MaryF profile image
MaryF in reply to Marz

I think you would have to stretch your imagination to turn my panting into any form of singing, it is without a doubt 'Somaerobics' I just imagine I am doing it and that really the exercise only exists as a figment of my imagination, if only Professor Tweetabix was here to sooth me, and help me progress to zumba . MaryF

Well, the only Triathlon I would take part in would be:

1 Sleeping

2 Snoozing

3 Meditating

I find all of those distract my mind from all sorts of things. Shame they are still there afterwards,

MaryF profile image
MaryF in reply to Angel_of_the_North

Keep well. MaryF

I am astounded that a Professor might say 'it's a mental illness, not a real illness'

Since when was a mental illness not real and what is he implying?

I hope that the statement is a mis-quote and has been quoted out of context. I also hope that mental health. mental illness and ME support organisations make enough noise that the quote is clarified.

*watches tearfully as the 'told you so' brigade jump merrily on their bandwagons*

x

P.s. Edited to remove some of my ranting!

MaryF profile image
MaryF in reply to

Have a nice day.... xx MaryF

in reply to MaryF

MaryF, I loved the Wonder Woman clip... I'd forgotten how cheesy it was! I may just have to watch some more episodes online!

x

MaryF profile image
MaryF in reply to

Good for you. MaryFx

LindaC profile image
LindaC

Oh my, now its hit the newspapers = great! Just what people need... the public being further encouraged to believe that CFS/ME people really are somehow 'not quite right, lazy good for nothings' :-( As if such people do not suffer enough with the authorities, having to do their utmost to survive financially when unable to work...

I merely speculated this year that my worst fatigue ever could be either of those conditions, so asked about this. I was told that Cognitive Behavioural Therapy and Graded Exercise Therapy is the standard treatment... I confess to having 'scoffed' at the mere suggestion of this ludicrous notion.

This supposed grand scale level of malingering is... what can anyone say other than, If_ You_Don't_Know_Put_Your_Hands_Up_and_Stop_Patient_Blaming'... for some, we may as well be living in the times of Arthur Miller and The Crucible ;-)

To coin the phrase of Dr Myhill: "It's Mitochondria Not Hypochondria".

There is no evidence to support the validity of these half-baked 'therapies' as applied to CFS/ME, other than 'fob-off' techniques [jobs of course].

Neuroendocrinology Letters Volume 30 No. 3 2009

A review on cognitive behavorial therapy (CBT) and graded exercise therapy (GET) in myalgicencephalomyelitis (ME) / chronic fatigue syndrome (CFS): CBT/GET is not only ineffective and not evidence-based, but also potentially harmful for many patients with ME/CFS.

"We conclude that it is unethical to treat patients with ME/CFS with ineffective, non-evidence-based and potentially harmful "rehabilitation therapies", such as CBT/GET."

Frank N.M. Twisk (1) and Michael Maes (2)

1. ME-de-patiënten Foundation, Limmen, the Netherlands.

2. Clinical Research Center for Mental Health (CRC-MH), Antwerp, Belgium.

ncbi.nlm.nih.gov/pubmed/198...

Even psychiatry doubts [that is bad ;-) ] the validity of this 'hypothetical model' ;-)

"CBT and GET were based on a hypothetical model of chronic fatigue syndrome whereby symptoms and disability are assumed to be primarily perpetuated by a fear of symptoms and activity, avoidance of activity, and associated deconditioning (lack of fitness). CBT and GET were intended to address these assumed perpetuating factors and to “reverse”2 the illness, leading to “an increase in activity capacity” and ultimately a recovery. CBT mainly focused on addressing fear and avoidance, and GET on reversing deconditioning."

thelancet.com/journals/lanp...

It feels like we're living in a time warp... well, something is very warped indeed.

Onward and upward :-)

MaryF profile image
MaryF in reply to LindaC

Yes agreed. MaryF

asmile4u profile image
asmile4u

I will be able to think myself well when I have recovered from this imaginary illness. ;)

MaryF profile image
MaryF in reply to asmile4u

Yes I thought I might hire a magic carpet directly to the offices of the medical regulator and have a lie down on one of their reception couches until the imagined illnesses pass. MaryF

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