Hi all, I'm now almost 42, & have been diagnosed as HypoT since I was about 23. For years I have been struggling with extreme exhaustion, went private, tried Armour (which worked much better) even got it prescribed on the NHS (for a time, till I moved!!!) But never felt right......every day is a struggle, etc etc (I dont have to explain to you guys, cos I know u all 'get it'!!!) Anyway, in my quest for trying to get Armour prescribed to me on the NHS again, I was sent off to see a different Endo, at a different hospital. Same old story, blood tests look fine, cant see any reason for you still feeling like you do...however, she did say something different that not one other dr had said to me before....I want your GP to refer you for a sleep study!
Well, that was at the end of January.....2 sleep study's & a daytime nap study later & I have been diagnosed with Idiopathic Hypersomnia. (Which basically means excessive sleepiness of no known cause) Its related to Narcolepsy, but without the Cataplexy, & differently from Narcoleptics, where after they have a sleeping epidsode they feel refreshed, however, people with IH still feel exhausted & NEVER EVER feel refreshed when they wake......funnily enough, sometimes they treat people with IH with thyroxine (God knows why cos its never done anything for me!!! lol)
So to cut a long story short, maybe its something that if you;ve tried every angle, & you're still feeling exhausted & cant find a reason....maybe its worth asking for a study???? xxxxxxxx