Misdiagnosis?

as I have said so many .times before I m diagnosed with underactive thyroid and have been on 150mg of levo- thyroxine a day Initially went 20 years ago with chronic insomnia I still have it and it takes prescription pills 3 a night to get 4 hours sleep in total Zero without it .cant gain weight/ boundless energy says I have "paradoxical symptoms .Endrinocologist agrees Any thoughts?

7 Replies

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  • Hi Fidelis

    I had chronic insomnia for 2 years before I was diagnosed with Adrenal fatigue brought on by Thyrotoxicity.

    I had a comprehensive Adrenal panel, to confirm my cortisol was really high, and my Dhea was very low.

    Have you thought about having your adrenal levels tested?

  • no one has ever suggested it, do I just ask my doctor . This is a very remote Highlands area with 1 doctor and 100 miles to nearest major hospital though a smaller one 50 miles away!

  • Fidelis, your GP can order a serum saliva test which will tell whether you have low cortisol (Adddison's) or high cortisol (Cushings).

    Alteratively, you can order private saliva cortisol tests from Genova or Blue Horizon which measure cortisol levels throughout the day. Your GP is unlikely to recognise the results but members can advise whether adrenal supplements might be helpful and recommend what to take according to your results. thyroiduk.org.uk/tuk/testin...

    Disclaimer: I am not medically trained. My advice is based on my personal experience &/or research and is not given in my capacity as an Admin of Thyroid UK or endorsed by TUK. Information on the forum is not intended to be a substitute for medical guidance from your own doctor.

  • What were your symptoms before being diagnosed?

  • none at all , picked up by blood test for something else!

  • Wow, that is unusual. I second what Monica is stating. I would have my adrenals checked. I am also on DHEA and Adrenal Supplements and had insomnia really bad before being diagnosed.

  • Fidelis, Lack of weight gain doesn't mean you were misdiagnosed. Not everyone gains weight when they're hypothyroid. I gained some welcome weight when I was on T3 after thyroidectomy but lost 7kg when I was switched to Levothyroxine and struggle to maintain weight since. I gained 2.5-3kg both times I came off Levothyroxine and lost it within a couple of weeks resuming it. I certainly don't have boundless energy though, quite the opposite :(

    Disclaimer: I am not medically trained. My advice is based on my personal experience &/or research and is not given in my capacity as an Admin of Thyroid UK or endorsed by TUK. Information on the forum is not intended to be a substitute for medical guidance from your own doctor.

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