The Conversation is a website run by academics and researchers which posts interesting articles.
The following two are about the effects of psychiatric misdiagnosis ( often algorithmic) of autoimmune diseases and the long term effects this has. I for one can 100% agree with this.
I will put the links in comments.
Written by
Mollyfan
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I'm still reading your links but this one from the "all in your head" article shocks me :
"Several [doctors] explained that they thought they were being reassuring by telling patients that their symptoms were most likely to be psychological or stress-related and thought this would be preferable to patients worrying about having a disease."
It's worrying that doctors have so little understanding of human behaviour and what the implications of their own words are for the patient.
When it's been implied to me that my problems are all in my head it immediately implies to me that...
a) They don't believe me.
b) I'm not going to get a diagnosis.
c) I won't be helped.
d) At most, I'll be offered anti-depressants if anything at all, and if I refuse them (which I always do) it will be noted in my records that I am "non-compliant". And once that is on anyone's records it will make getting help for anything much harder in future.
I've just remembered something that happened to my late mother... She had really obvious lung cancer (in my untrained opinion), but no diagnosis. She had lost 3.5 stone in weight because she was coughing so badly over a period of several months, to the extent that she was vomiting most of her food up. She coughed so much she couldn't hold proper conversations.
After five months of coughing she was sent for a lung x-ray, and to this day I still don't understand this. She was told afterwards "Good news,Mrs X, [big grin] your lungs are fine." So off she toddled, no better off, and still coughing and continuing to lose weight. About five weeks later she was finally admitted to hospital where the doctors realised that her cough was really, really bad. They gave her an MRI scan and then said "Bad news, Mrs X, you have very advanced lung cancer."
How does this repeated dismissal happen? Was it because she was over 80 and nobody wanted to treat her? She had been treated with alternating antibiotics and steroids for months on the assumption that she had an infection, and the fact that they never worked didn't seem to register with anybody! And she had a known long history of smoking, although she had stopped many years before. Nobody in the NHS engaged their brains at all. I do realise that nobody could have done anything for my mother, but they could at least have reduced her pain and suffering.
I wonder if my mother had "drug-seeker" on her records. She had a long list of health problems which were treated. But when she developed the one that killed her she was just left to rot.
Doctors minimise everything because they assume patients - particularly female ones - exaggerate everything.
We should not underestimate the power of doctors saying “I believe you” to patients with multiple invisible symptoms, and “I am sorry for what has happened in the past” if they had a difficult road to diagnosis.
Most of the 50 doctors interviewed for the study reported that misdiagnoses were common in autoimmunity, but few had realised that the repercussions of these misdiagnoses were so severe and long lasting.
Over 25 years ago……..By far the best consultation I had early on with endocrine departments…..was 5 years into treatment, still very unwell….by then, at a an endocrine centre of excellence, a lovely female endocrinologist said
“I believe you, we see lots of autoimmune patients here who have a long and very difficult struggle to get well”
It was such a relief to here a medic acknowledge it wasn’t “just in my head” ….as both the local endo and GP had stated.
I've been on the receiving end of treatment like this multiple times . I've been called the boy that cried wolf, been told I should be grateful for access to paracetamol, told I'm imagining things, told to just go on holiday ,told I'm wasting everyone's time ,told i don't look like the sort of person that can't handle a bit of pain ,told I don't look sick. I've had myocarditis 3 times , a near fatal heart attack & a cardiac arrest & now my thyroid is trying to take me out . It only takes one dr to believe someone & want to help ,I've yet to meet them , been gaslit for 7 years straight 💔
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