Is my problem with my thyroid causing my heart problems??

[Razzar1977]

Currently stuck to a heart monitor for 2 weeks think it's called an event monitor. Keep getting chest pains and feels like my heart is flipping over. It's got to such a point where I can't walk far at all. Had this fitted today I'm hoping this new t3 is going to help with all the symptoms. X

[Clutter]

Razzar, the monitor will record any unusual events. It's not uncommon to have palpitations, racing heart and ectopic beats when undermedicated and may also be due to Levothyroxine not suiting you. Levothyroxine only caused me problems too but various ECGs and ambulatory 24 hour monitor didn't show up heart problems. Adding T3 to Levothyroxine pretty much solved my problems.

[Razzar1977 in reply to Clutter]

Well hoping this will solve my problems now sometimes I feel my hearts going to stop it even wakes me up the chest pains can get that bad. Guess it's going to take some time to get the levels right for me. At least I'm on the right path now. It's only taken 10 years of tears lol x

[Clutter in reply to Razzar1977]

Razzar, I'm still mildly bitter that it took 18 months for me to sort me out (not endo) after I was switched from Liothyronine to Levothyroxine. So many ECGs, chest X-Rays, a lung function test and a possible fibro diagnosis when the problems were resolved by clearing a build up of Levothyroxine which enabled me to recover on T4+T3.

[Razzar1977 in reply to Clutter]

I know how u feel I was told if I lose weight my problems would dissappear or if I exercise. If I was getting right treatment I wouldn't have got to this point I'm literally house bound. They also tried to tell me I had fibromyalga. Hospital started to get angry saying nothing was wrong and my weight was the issue. The consultant said now I'm on the right mess my problems ahould start to get better even my raised cholesterol . Hospital never believed the fact I hardly eat to get to the weight I'm at. I have never been this big in my life. Apparently I have not been absorbing t4 at all . All the docs were doing were upping my dose all the time. I was on 225 mcgs of levo but stopped that yesterday. Guess it's going to take time x

[Clutter in reply to Razzar1977]

Razzar, if the unconverted T4 has been pooling it can take up to 14 weeks on T3 only for the build up of T4 to clear. Don't be cast down if the T3 isn't working immediately. Taking no replacement speeds up clearance and the low dose of T3 your endo has prescribed will speed clearance more than taking a high dose.

I didn't feel any better on 60mcg T3 until I cleared the T4 by stopping T4 for 8 weeks and in desperation stopping T3 too for 4 weeks. All the troubling symptoms resolved although I was extremely hypo with TSH 107.5. Took about 7 weeks on T4+T3 to get TSH down to 0.16 which was slightly over target and I was on my way to recovery then.

[Razzar1977 in reply to Clutter]

So this is going to be a very slow progress but hopefully I am on the right path. Do you know why my endo has decided to treat me with only just T3 not a combination of both like most of the people on here. Sorry I sound so thick but I have been stuck so long without the right help I don't know wether I'm coming or going. For me I don't really mind how long it takes I been so ill for so long I don't know what normal is

I can't imagine things being any worse than this. My tsh level was 98 I think he said he did say no wonder you feel so shit. He has ordered a load of other tests to be taken in 2 weeks and then again in 8 weeks.

[Razzar1977 in reply to Razzar1977]

I think that's why he said my body wasn't absorbing the T4 and also said it wasn't converting at all from T4 to T3. He said looking back on recent blood tests they were not any different. I don't understand why the doctors had not picked up on this issue themselves and why it took me to ask to be referred to a specialists , as I knew I just wasn't right .

[Hidden in reply to Clutter]

HI Clutter - Razzar asked this question too.. Why do some people treated with combination of t3/t4 and other t3 only?

[Hidden in reply to Clutter]

Hi Clutter - did you find that you had problems with Levo even when on the smallest dose? I got palpitations and racing pulse from when I started on Levo.

[Clutter in reply to Hidden]

Keziablue, I started on 200mcg Levothyroxine and felt just as bad on 100mcg. Adding T3 calmed the adverse effects.

Some people don't tolerate Levothyroxine or thyroxine in NDT and need T3 only.

[Hidden in reply to Clutter]

Thank you. Pretty sure I need to be on something, just haven't worked out what yet. Everyone seems to go on trial and error, so I guess I will end up trying t3 and if no joy, then NDT.