Last week started with persistent headaches. I have high BP as well as hashimotos and have a monitor at home for the BP. I checked and it was raised. I then had a feeling of missed heartbeats on Thurs evening and also felt panicky and had frequent urination. I spent most of the weekend not feeling right and resting. I also get a kind of tight feeling in my legs when my BP is raised.
I have been worrying as it felt like something was about to happen, almost like I was getting warning signs.
Saw GP today and I've had bloods done and an ECG which was normal. Also arranging for a 24 hour holter monitor. Typically I felt alot better today than I have been and BP was good after being high at home for days!
Anyone get these symptoms or know what it could be?
Thanks.
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Syd35
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I have Graves Disease and have had high blood pressure, heart palpitations and headaches regularly. Actually before I found out I was Graves I had headaches daily. It was awful so I understand completely.
I have Been to a cardiologist and had a stress echo as well as EKG’s. Have you been to a cardiologist? I also had CT scans of my chest and head as well as MRI’s. Thyroid affects our body in ways I have never known until I was diagnose with Graves this past February. My advice is to keep searching for specialist to help you.
I’ve been to An ENT, Cardiologist, the ER twice, my gynecologist, Internist, Orthopedic, as well as two different Endocrinologists and a Gastroenterologist. The thyroid also affects your mind, sadly. I feel sick and worried. My numbers are returning close to normal. I was never worried this before my thyroid problem. Find a doctor that understands and will exam you to give you piece of mind as well. My cardiologist gave me a CT scan of my chest because he knew I was stressed and scared. He wanted to put my mind at ease. I went to the ER for headaches and they did my CT for my head. I swore I had a tumor.
I also get heart palpitations with antihistamines. I stopped those even though I have allergies. It scarred me so much I just use nasal sprays now. I’m trying acupuncture next for my muscle myopathy. See what meds you are taking over the counter (if any). Make sure they won’t create other side affects. Are you taking vitamins D3 and B12? These need to be checked and very important.
I realized I need to take charge and visit doctors to eliminate possible illnesses for my mind and well as how awful I was feeling. It may take searching for the right doctor but be persistent to get one that makes you feel comfortable.
Do you drink k lots of water? I do and that helps. I do urinate a lot. I’m thirsty all the time. Avoid caffeine too. I drink decaf now. With the exception of matcha due to its health benefits.
Finally,, how is your diet? I found removing gluten was a huge help. I also avoid soy and now dairy.. trying to eat well and avoiding high sodium processed foods has helped. I won’t do this diet forever but until I feel I’m in remission or feeling as close to normal I will introduce one in small quantities to see how my body reacts.
I hope you get the best care and strait to feeling better soon!!!
Thanks so much for taking the time to reply Kim327 I am a bit low today so it's heartening to know someone cares
Had my Hashimotos for over 3 years now so pretty clued up especially since joining this forum. Just when you think everything has calmed down, bam a new symptom appears! I have done alot of what you mention, checked vitamin levels, cut out gluten etc. I go through times of feeling on top of the world then comes the inevitable crash.
All a bit overwhelming at times and with two young kids I am worrying as need to be healthy for the family.
Sounds like you've had quite the journey yourself and I wish you health and happiness. xx
Please see my reply I just sent to Syd35. Hang in there you are not crazy.... I am right there with you. You are not a hypochondriac! I swore I was, which I never was before. Its this crazy thyroid. Mental and physical trauma!
I completely understand how your feel. It is a roller coaster and we think when a new symptom arises we have some disease the doctors haven't discovered yet. I feel your pain, and so, so sorry you are down today. Knowing others are here that really understand and care has helped me as well.
I also have children 8, 11 and 18 as well as 2 step children. When I am down I feel like I have no patience and no one even understands me or realizes I might be dying. I feel like I am counting the days to find out what is really wrong with me. This can't just be Graves Disease can it? It is insane!
Reaching out here has helped me immensely from other great people like yourself, going through the same thing. We are not hypochondriacs we have an illness that the medical industry really has no clear cut answers on how or why it happens. As patience know all too well that it is emotional torture as well as painful.
Just remember you are not alone, and you are completely normal with your condition. I have seen more specialists since February of this year than I have in my entire 48 years! It is crazy how this illness affects every part of your body, and mind!
I think like you do, I need to be healthy for my children and family. I used to be the rock that got up and went no matter what, and always positive. Now I just want to crawl back into bed. That just makes me more crazy though. I get on the internet and look up what my new symptom(s) could possibly be, and then I think I am dying and get even more scared, depressed and research a new specialist to go see or take a trip to the ER! I stopped researching every ache and pain. Worse thing I could have done to myself.
I hope you can try to take time for yourself and rest. One of my doctors advised me to get 8 hours sleep a night. I laughed thinking that is next to impossible with my children, work and family. However, he said sleep is extremely important for our health. Especially with our condition. I found that when I do get the chance to sleep 8 hours (which I make sure my husband and children know is so important for all of us) I feel much better. I am still crazy with fear at times when I get a chest pain in one spot or like now my left shoulder and bicep are aching daily which started from my head which took me to the ER for a CT scan and a neurologist all to tell me I have a pinched nerve caused by the herniated disc I've had for years in my neck. I am now going for acupuncture tomorrow. I heard wonderful things, and going to an Doctor in my area that specializes in thyroid conditions. I will be sure to let you know if I find it helps!
Take care of you. Yes, your family needs you, but unless you are rested and taking care of you, you can't be everything you want to be for them.
Rest and be assured your are not alone and I care as well as countless others on this forum!
I truly wish you all the very best to feel better so you can enjoy your family!
Thanks Kim was good to read your reply and alot of what you say sounds just like me! Feeling a bit better today guess we just have to take it one day at a time. Have a good week 😍
I had tears in my eyes, because you described me, 20 days ago I went to the ER because I had a sharp pain on my calf and I thought the worst but, the doc told me it was a deep muscle pain.
I'm tired in the afternoon every day, I'm doing some blood work on monday, checking vit. B12.
I hope you start getting more sleep! Rest is an absolute must (when possible) but should be your priority now.
I am so sorry of your ER scare but so happy to hear nothing serious. It is very Nice to hear my story helped you in some way. Always nice to know we’re not alone or crazy!. I know plenty of others here have helped me tremendously! Including you!
I also take Turmeric Curcumin with black pepper. Make sure you do research if interested m. It helped me greatly with muscle aches and pains. It is a natural anti inflammatory.
Be well and please let me know how your bloods tests go!!
I took a supplement. Make sure you research a good one though. As with all of the, they can not be what they say they are. I also purchased pure tumeric. I use it in dishes I make and make sure I have it with pepper and fats like organic extra virgin olive oil. Hope you feel better!!!
Hi Kim327.... i read your postings and felt relieved as i have been feeling just the same as you and have been very worried and close to madness of the feelings especially the palpitations.
I was diagnosed with Graves' Disease and have since been on Carbimazole, I also have high blood pressure. I was feeling good especially when the thyroid test produce normal results until a couple of months ago prior to having palpitations for no apparent reasons
I was in the ER just last week and gone through the tests you mention ie ECHO,CT scan of my chest and blood tests for possibilites. The results of the tests showed neither viral infections nor any related issues to the heart like blocked arteries and high calcium in the arteries.
i was really down and worried and have since rested at home till today. I am a bit low the whole week and its heartening to know there is someone also going through the same episode and cares to share.
Sorry to hear you're feeling low too. It's crazy how many of us this affects and makes it hard to understand how we are not looked after better. Hope you have a better day and things start improving for you 💕
Thank you for your reply. Glad my story helped you feel you are not alone! You are not! You are normal and it’s this disorder affecting your entire body and mind. Try to always remember that!
I’m very happy to hear your tests came back clear, and that you have been able to rest too. I hope you can relax a bit each day and avoid thinking the worst every time you feel a pain like I was doing. I know easier said than done! I was getting to feel like the most annoying person to my husband with another problem.
I also get palpitations and high blood pressure even though I’m normal. Avoid antihistamines. My allergist game me one and for 3 hours my heart was racing until 3AM. I was so scared but realized it was the antihistamine pill I took! Do you have beta blockers for when that happens? I do, but trying to end the pills. I’m so sick of pills and hoping to just get back to straight vitamins. Also, I have a cardiologist and did a stress echo. I came back clear but going for a check in 3 months. Just good to have a cardiologist you like to follow up. Sounds like you’re like me. Just the Graves Disease that lingers even when your thyroid levels are normal.
It’s the craziest disease! I can tell you this taught me a lot about life. You never know what someone is going through. When I see people now in public I realize everyone has something. Until I had this, I never dreamed anyone could feel this bad from their thyroid.
Each time I have a CT scan, MRI, see a new specialist or take a trip to ER my husband’s like, I don’t think there is anything left to check sweetheart. He’s being patient, but can tell he’s probably like enough already in his mind!! I feel relieved for a day or two and then something else hurts and puts me back on the search to find what’s wrong and swear the doctors all missed something. I also always ask the doctors, “Are you sure I don’t have a tumor or something?” It is just hard to believe I can feel so bad and it’s just my thyroid!
I am trying to stop this madness. Today I am trying acupuncture. I live in the U.S. and hear wonders from anyone who has tried it! I will post here if I find relief. It may not work the first go but I am on the search to find what helps me,
and others like us to live a full and happy life again!
This disease has affected my joints and muscles so the aching remains even though my levels are normal range. I can see why so many people are misdiagnosed with depression or anxiety. Let’s face it, this disease causes both.
I hope you keep relaxing as much as you can. I find a good happy movie I enjoy in evening before bed, even if one I saw already, helps me take my mind off of my ailments. Someone else may enjoy a good book or a quiet walk. Whatever relaxes you, I recommend before going to sleep at night. It puts me in a better mood for a good nights rest. Something we all
need!
I wish you all the best for a healthy and happy future!
Hi Kim327....your postings is picturesque to the ever challenging day to day activities for Graves Disease patients..but nevertheless we are all humans and there are days when we especially myself could not tolerate the ups and downs of this disease.Madness !!!!
Oh yes ... when my Endo gives me result showing I am normal and yet when I am not feeling great or a little weirdo I swear the Endo had missed a test or had not done the correct test...
OMG!!! emotional support by my family helps but then i myself have to have very strong mind to block the negatives...which many times I failed.
Frankly I find comfort reading all the postings related to me... and yes.. as you said ..I am not alone in this journey.
Take care & Thank you and hope to hear more from you.
Welcome back! Please Keep trying! It’s just terrible how hard it is to find someone good. I know it’s tough to but you are worth it ! You will also better with the proper care!! Good luck!!
yes.. hopefully and thanks for the warm message. the communities here are really helping each other emotionally & psychologically by contributing all their thoughts in addressing and overcoming the ever challenging journey of thyroidism.
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